Tehran University of Medical Sciences

Science Communicator Platform

Stay connected! Follow us on X network (Twitter):
Share this content! On (X network) By
Exploring the Ethical Decision-Making Experience of Caregivers of End Stage Cancer Patients in Iran: A Phenomenological Study Publisher Pubmed



Hosseini SE1 ; Narabadi AN3 ; Abbasi A4 ; Joolaee S5 ; Sheikhzakaryaee N8 ; Shali M3
Authors
Show Affiliations
Authors Affiliations
  1. 1. Department of Medical- Surgical Nursing, School of Nursing & amp
  2. 2. Midwifery, Iran University of Medical Sciences, Tehran, Iran
  3. 3. School of Nursing and Midwifery, Tehran University of Medical Sciences, Tehran, Iran
  4. 4. Department of Nursing, School of Nursing and Midwifery, Shahroud University of Medical Sciences, Shahroud, Iran
  5. 5. Department of Evaluation and Research Services, Fraser Health Authority, UBC Centre for Health Evaluation & amp
  6. 6. Outcome Sciences (CHEOS), Vancouver, BC, Canada
  7. 7. Nursing and Midwifery Care Research Center, Iran University of Medical Sciences, Tehran, Iran
  8. 8. Faculty of Nursing and Midwifery, Kurdistan University of Medical Sciences, Sanandaj, Iran

Source: BMC Medical Ethics Published:2024


Abstract

Background: Ethical decision making is a complex issue because it strongly depends on the religion, beliefs, traditional laws and moral views of each society. The purpose of this study was to explore the experience of Iranian family caregivers of end stage cancer patients about ethical decision making. Methods: This qualitative study is based on van Manen’s method of hermeneutic phenomenology. In-depth interviews were carried out to collect data. Participants were 12 caregiver. Audiotapes were transcribed and analyzed for common themes that represented the participants’ experiences. Trustworthiness of the findings was established using the Lincoln and Guba’s criteria. Results: Three themes reflected the essence of caregivers’ lived experience including; fluctuating between hope and despair, wandering dilemma, and ethical decision making. Each of these themes consisted of several subthemes. Conclusion: The present study revealed that, the caregivers of terminally ill cancer patients need different information about prognosis and end of life decision making process. Our perception of how families negotiate ethical issues in their decision-making is still developing. Opportunities should be created to empowering caregivers to talk about their uncertainties and concerns. © The Author(s) 2024.
Related Docs
Experts (# of related papers)