Dashboard of Multiple Sclerosis Surveillance Registry: Developing Its Key Performance Indicators Publisher



Zeraatkar K¹ ; Ahmadi M² ; Sahraian MA³ Show Affiliations
Source: Acta Medica Mediterranea Published:2018

Abstract

Introduction: Multiple sclerosis (MS) registries with longitudinally collected data have the potential to produce big data over time. Business intelligence visual analytics tools like dashboards can be used to navigate, manipulate, and convert such big data into actionable knowledge. The combined use of clinical dashboards with MS registries can provide near real- time surveillance to improve patient outcomes when appropriately configured. The first step for dashboard development is to determine its key performance indicators (KPIs). Method: This qualitative study was conducted in 2017. Interviews with neurologists for requirement analysis was performed after studying the MS registries' aims and indicators in leading countries. The face and content validity and also reliability of the questionnaire were assessed by expert's opinions and Cronbach's alpha, respectively. In order to make a consensus about dashboard KPIs, Delphi technique was applied. Results: A set of 45 KPIs was developed for the MS surveillance registry dashboard and categorized into three layers-country layer, regional layer, and patient layer-with 7, 28, and 10 indicators, respectively, in each layer. Conclusion: The first step to develop the MS surveillance registry dashboard is to determine its key performance indicators. KPIs serve as a mind map for collecting key data for dashboard visualization. These indicators provide a framework for performance measurement and create the basis for quality assurance and quality improvement of MS care. © 2018 A. CARBONE Editore. All rights reserved.