Using Electronic Health Record System to Establish a National Patient's Registry : Lessons Learned From the Cancer Registry in Iran

Using Electronic Health Record System to Establish a National Patient's Registry : Lessons Learned From the Cancer Registry in Iran Publisher Pubmed

Nahvijou A¹ ; Esmaeeli E² ; Kalaghchi B³ ; Sheikhtaheri A⁴ ; Zendehdel K^{1, 5}

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1. Cancer Research Center, Cancer Institute, Tehran University of Medical Sciences, Tehran, Iran
2. Health Information Management Department, School of Allied Medical Sciences, Tehran University of Medical Sciences, Tehran, Iran
3. Radiation Oncology Research Center, Tehran University of Medical Sciences, Tehran, Iran
4. Department of Health Information Management, School of Health Management and Information Sciences, Iran University of Medical Sciences, Tehran, Iran
5. Department of Medical and Surgical Sciences, University of Bologna, Bologna, Italy

Source: International Journal of Medical Informatics Published:2023

Abstract

Background: In Iran, the Integrated Electronic Health Record system, called SEPAS, has been established to store all patient encounters of individuals referring to healthcare facilities. Objective: We aimed to develop a model for cleaning SEPAS and applying its data in other databases. Methods: We used cancer data from SEPAS as the sample. We developed a guideline to identify codes for cancer-related diagnoses and services in the database. Furthermore, we searched the SEPAS database based on ICD-10 and the diagnosis description in English and Farsi in an Excel sheet. We added codes and descriptions of pharmaceuticals and procedures to the list. We applied the above database and linked it to the patient records to identify cancer patients. A dashboard was designed based on this information for every cancer patient. Results: We selected 5,841 diagnostic codes and phrases, 9,300 cancer pharmaceutics codes, and 452 codes from cancer-specific items related to the diagnostic procedures and treatment methods. Linkage of this list to the patient list generated a database of about 197,164 cancer patients for linkage in the registry database. Conclusions: Patient registries are one of the most important sources of information in healthcare systems. Data linkage between Electronic Health Record Systems (EHRs) and registries, despite its challenges, is profitable. EHRs can be used for case finding in any patient registry to reduce the time and cost of case finding. © 2023 Elsevier B.V.

2. Diseases and Health Outcomes Registry Systems in I.R. Iran: Successful Initiative to Improve Public Health Programs, Quality of Care, and Biomedical Research, Archives of Iranian Medicine (2017)

3. Development of a Tool for Comprehensive Evaluation of Population-Based Cancer Registries, International Journal of Medical Informatics (2018)

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Kazem Zendehdel (3)

Azin Nahvijou (2)

Style	Citing Format
MLA	Nahvijou A, et al.. "Using Electronic Health Record System to Establish a National Patient's Registry : Lessons Learned From the Cancer Registry in Iran." International Journal of Medical Informatics, vol. 180, no. , 2023, pp. -.
APA	Nahvijou A, Esmaeeli E, Kalaghchi B, Sheikhtaheri A, Zendehdel K (2023). Using Electronic Health Record System to Establish a National Patient's Registry : Lessons Learned From the Cancer Registry in Iran. International Journal of Medical Informatics, 180(), -.
Chicago	Nahvijou A, Esmaeeli E, Kalaghchi B, Sheikhtaheri A, Zendehdel K. "Using Electronic Health Record System to Establish a National Patient's Registry : Lessons Learned From the Cancer Registry in Iran." International Journal of Medical Informatics 180, no. (2023): -.
Harvard	Nahvijou A et al. (2023) 'Using Electronic Health Record System to Establish a National Patient's Registry : Lessons Learned From the Cancer Registry in Iran', International Journal of Medical Informatics, 180(), pp. -.
Vancouver	Nahvijou A, Esmaeeli E, Kalaghchi B, Sheikhtaheri A, Zendehdel K. Using Electronic Health Record System to Establish a National Patient's Registry : Lessons Learned From the Cancer Registry in Iran. International Journal of Medical Informatics. 2023;180():-.
BibTex	@article{ author = {Nahvijou A and Esmaeeli E and Kalaghchi B and Sheikhtaheri A and Zendehdel K}, title = {Using Electronic Health Record System to Establish a National Patient's Registry : Lessons Learned From the Cancer Registry in Iran}, journal = {International Journal of Medical Informatics}, volume = {180}, number = {}, pages = {-}, year = {2023} }
RIS	TY - JOUR AU - Nahvijou A AU - Esmaeeli E AU - Kalaghchi B AU - Sheikhtaheri A AU - Zendehdel K TI - Using Electronic Health Record System to Establish a National Patient's Registry : Lessons Learned From the Cancer Registry in Iran JO - International Journal of Medical Informatics VL - 180 IS - SP - EP - PY - 2023 ER -

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