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Frequently Asked Questions of Individuals With Spinal Cord Injuries: Results of a Web-Based Consultation Service in Iran Publisher



Rezaei M1 ; Omidbeigi M2 ; Hanaei S3, 4 ; Saeedi N5 ; Naghdi K1 ; Vaccaro AR6 ; Rahimimovaghar V1, 7, 8, 9
Authors
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Authors Affiliations
  1. 1. Sina Trauma and Surgery Research Center, Tehran University of Medical Sciences, Tehran, Iran
  2. 2. Clinical Research Development Center, Loghman Hakim Hospital, Shahid Beheshti University of Medical Sciences, Tehran, Iran
  3. 3. School of Medicine, Tehran University of Medical Sciences (TUMS), Tehran, Iran
  4. 4. Universal Scientific Education and Research Network (USERN), Tehran, Iran
  5. 5. Department of Physiology and Neuroscience Research Center, Medical School, Shahid Beheshti University of Medical Science, Tehran, Iran
  6. 6. Rothman Institute, Thomas Jefferson University Hospital, Philadelphia, PA, United States
  7. 7. Brain and Spinal Injuries Research Center (BASIR), Imam Khomeini Hospital, Tehran University of Medical Sciences, Tehran, Iran
  8. 8. Department of Neurosurgery, Shariati Hospital, Tehran University of Medical Sciences, Tehran, Iran
  9. 9. Tissue Repair Laboratory, Institute of Biochemistry and Biophysics (IBB), University of Tehran, Tehran, Iran

Source: Spinal Cord Series and Cases Published:2018


Abstract

Study design Descriptive study of the results of a web-based consultation service for individuals with spinal cord injury (SCI). Objectives To review frequently asked questions (FAQ) among individuals with SCI and determine the most important topics. Setting Sina Trauma and Surgery Research Center, Tehran University of Medical Sciences, Tehran, Iran. Methods A cross-sectional study reviewing questions from patients with SCI that were collected from the Health and Safety Consultant Center (HSCC) between January and December 2015. The HSCC is a web-based medical consultation service that provides patients with information and counseling pertaining to SCI. Results A total of 113 questions were collected from 99 individuals. The mean age was 32.02 ± 13.28 years with a range of 3–70 years. Men accounted for 81.7% of the questions, while women accounted for 18.3%. The most common site of SCI was thoracic (40.6%), followed by lumbar (31.3%), and cervical (28.1%). Recovery potential (38.1%), sexual and repro-ductive issues (26.5%), urinary (10.6%), and motor (10.6%) problems were among the most commonly reviewed topics. Conclusions FAQ provide insight on areas of concerns for individuals with SCI and help guide providers to determine high-yield topics. Discerning the specific areas of need or concern for patients is instrumental in developing pertinent educational materials and programs, in addition to efficiently counseling patients and caregivers on the aftercare of SCI. © International Spinal Cord Society 2018.
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