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Trial-Centrism in the Declaration of Helsinki: A Challenge for Post-Study Access and Preventing Data Colonialism in Ai-Driven Health Research Publisher



Haidar H1 ; Gooshki ES2, 3
Authors
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Authors Affiliations
  1. 1. Ethics Programs Department of Letters and Humanities University of Quebec, Rimouski, Rimouski, QC, Canada
  2. 2. Medical Ethics and History of Medicine Research Center, Tehran University of Medical Sciences, Tehran, Iran
  3. 3. Monash Bioethics Centre, Monash University, Melbourne, VIC, Australia

Source: Canadian Journal of Bioethics Published:2024


Abstract

This letter proposes extending the post-trial provisions of the updated Declaration of Helsinki beyond pharmaceutical drugs to include AI tools, particularly those developed using data from low- and middle-income countries. Such an extension would help prevent data colonialism and ensure more equitable access to these tools, fostering fairness in global health research. © Hazar Haidar and Ehsan Shamsi Gooshki, 2024.