Tehran University of Medical Sciences

Science Communicator Platform

Stay connected! Follow us on X network (Twitter):
Share this content! On (X network) By
Availability, Coverage, and Scope of Health Information Systems for Kidney Care Across World Countries and Regions Publisher Pubmed



See EJ1, 2 ; Bello AK3 ; Levin A4 ; Lunney M5 ; Osman MA3 ; Ye F3 ; Ashuntantang GE6 ; Bellorinfont E7 ; Benghanem Gharbi M8 ; Davison S3 ; Ghnaimat M9 ; Harden P10 ; Htay H11 ; Jha V12, 13 Show All Authors
Authors
  1. See EJ1, 2
  2. Bello AK3
  3. Levin A4
  4. Lunney M5
  5. Osman MA3
  6. Ye F3
  7. Ashuntantang GE6
  8. Bellorinfont E7
  9. Benghanem Gharbi M8
  10. Davison S3
  11. Ghnaimat M9
  12. Harden P10
  13. Htay H11
  14. Jha V12, 13
  15. Kalantarzadeh K14
  16. Kerr PG15, 16
  17. Klarenbach S3
  18. Kovesdy CP17
  19. Luyckx V18, 19
  20. Neuen B20
  21. Odonoghue D21, 22
  22. Ossareh S23
  23. Perl J24, 25
  24. Rashid HU26
  25. Rondeau E27, 28
  26. Syed S3
  27. Sola L29
  28. Tchokhonelidze I30
  29. Tesar V31
  30. Tungsanga K32, 33
  31. Kazancioglu RT34
  32. Wang AYM35
  33. Yang CW36
  34. Zemchenkov A37, 38
  35. Zhao MH39, 40, 41, 42
  36. Jager KJ43
  37. Caskey F44, 45, 46
  38. Perkovic V47
  39. Jindal KK2
  40. Okpechi IG48, 49
  41. Tonelli M50, 51
  42. Feehally J52
  43. Harris DC53
  44. Johnson DW54, 55, 56
Show Affiliations
Authors Affiliations
  1. 1. Department of Intensive Care, Austin Health, Melbourne, VIC, Australia
  2. 2. School of Medicine, University of Melbourne, Melbourne, VIC, Australia
  3. 3. Division of Nephrology and Immunology, Department of Medicine, University of Alberta, Edmonton, AB, Canada
  4. 4. Division of Nephrology, Department of Medicine, University of British Columbia, Vancouver, BC, Canada
  5. 5. Department of Community Health Sciences, University of Calgary, Calgary, AB, Canada
  6. 6. Faculty of Medicine and Biomedical Sciences, Yaounde General Hospital, University of Yaounde I, Yaounde, Cameroon
  7. 7. Division of Nephology and Hypertension, Department of Medicine, St Louis University, St Louis, MO, United States
  8. 8. Urinary Tract Diseases Department, Faculty of Medicine and Pharmacy of Casablanca, University Hassan II of Casablanca, Casablanca, Morocco
  9. 9. Nephrology Division, Department of Internal Medicine, The Specialty Hospital, Amman, Jordan
  10. 10. Oxford Kidney Unit, Oxford University Hospitals NHS Foundation Trust, Oxford, United Kingdom
  11. 11. Department of Renal Medicine, Singapore General Hospital, Singapore, Singapore
  12. 12. George Institute for Global Health India, New Delhi, India
  13. 13. Nuffield Department of Clinical Medicine, University of Oxford, Oxford, United Kingdom
  14. 14. Division of Nephrology and Hypertension, University of California, Irvine Medical Center, Orange, CA, United States
  15. 15. Monash Medical Centre, Department of Nephrology, Monash Health, Clayton, VIC, Australia
  16. 16. Department of Medicine, Monash University, Clayton, VIC, Australia
  17. 17. Department of Medicine, University of Tennessee, Health Science Center, Memphis, TN, United States
  18. 18. Institute of Biomedical Ethics and the History of Medicine, University of Zurich, Zurich, Switzerland
  19. 19. Renal Division, Harvard Medical School, Brigham and Women's Hospital, Boston, MA, United States
  20. 20. The George Institute for Global Health, Newtown, NSW, Australia
  21. 21. Salford Royal NHS Foundation Trust, Salford, United Kingdom
  22. 22. University of Manchester, Manchester, United Kingdom
  23. 23. Division of Nephrology, Hasheminejad Kidney Center, Department of Medicine, University of Medical Sciences, Tehran, Iran
  24. 24. Division of Nephrology, St Michael's Hospital, Keenan Research Centre, Li Ka Shing Knowledge Institute, Toronto, ON, Canada
  25. 25. Division of Nephrology, Department of Medicine, University of Toronto, Toronto, ON, Canada
  26. 26. Department of Nephrology, Kidney Foundation Hospital, Research Institute, Dhaka, Bangladesh
  27. 27. Intensive Care Nephrology and Transplantation Department, Assistance Publique-Hopitaux de Paris, Hopital Tenon, Paris, France
  28. 28. Sorbonne Universite, Paris, France
  29. 29. Dialysis Unit, CASMU-IAMPP, Montevideo, Uruguay
  30. 30. Nephrology Development Clinical Center, Tbilisi State Medical University, Tbilisi, Georgia
  31. 31. Department of Nephrology, General University Hospital, Charles University, Prague, Czech Republic
  32. 32. Department of Medicine, Faculty of Medicine, King Chulalong Memorial Hospital, Chulalongkorn University, Bangkok, Thailand
  33. 33. Bhumirajanagarindra Kidney Institute, Bangkok, Thailand
  34. 34. Division of Nephrology, Bezmialem Vakif University, Istanbul, Turkey
  35. 35. Department of Medicine, Queen Mary Hospital, The University of Hong Kong, Hong Kong
  36. 36. Kidney Research Center, Department of Nephrology, Chang Gung Memorial Hospital, Chang Gung University, College of Medicine, Taoyuan, Taiwan
  37. 37. Department of Internal Disease and Nephrology, North-Western State Medical University Named after I.I. Mechnikov, St Petersburg, Russian Federation
  38. 38. Department of Nephrology and Dialysis, Pavlov First Saint Petersburg State Medical University, St Petersburg, Russian Federation
  39. 39. Renal Division, Department of Medicine, Peking University First Hospital, Beijing, China
  40. 40. Key Laboratory of Renal Disease, Ministry of Health of China, Beijing, China
  41. 41. Key Laboratory of Chronic Kidney Disease Prevention and Treatment, Ministry of Education of China, Beijing, China
  42. 42. Peking-Tsinghua Center for Life Sciences (CLS), Beijing, China
  43. 43. ERA-EDTA Registry, Academic Medical Center, Department of Medical Informatics, Amsterdam Public Health Research Institute, University of Amsterdam, Amsterdam, Netherlands
  44. 44. UK Renal Registry, Learning and Research Building, Southmead Hospital, Bristol, United Kingdom
  45. 45. Population Health Sciences, University of Bristol, Bristol, United Kingdom
  46. 46. The Richard Bright Renal Unit, Southmead Hospital, North Bristol NHS Trust, Bristol, United Kingdom
  47. 47. The George Institute for Global Health, University of New South Wales Sydney, Sydney, NSW, Australia
  48. 48. Division of Nephrology and Hypertension, University of Cape Town, Cape Town, South Africa
  49. 49. Kidney and Hypertension Research Unit, University of Cape Town, Cape Town, South Africa
  50. 50. Department of Medicine, University of Calgary, Calgary, AB, Canada
  51. 51. Pan-American Health Organization, World Health Organization's Collaborating Centre in Prevention and Control of Chronic Kidney Disease, University of Calgary, Calgary, AB, Canada
  52. 52. University of Leicester, Leicester, United Kingdom
  53. 53. Centre for Transplantation and Renal Research, Westmead Institute for Medical Research, University of Sydney, Sydney, NSW, Australia
  54. 54. Centre for Kidney Disease Research, University of Queensland, Brisbane, QLD, Australia
  55. 55. Translational Research Institute, Brisbane, QLD, Australia
  56. 56. Metro South and Ipswich Nephrology and Transplant Services (MINTS), Princess Alexandra Hospital, Brisbane, QLD, Australia

Source: Nephrology Dialysis Transplantation Published:2022


Abstract

Background: Health information systems (HIS) are fundamental tools for the surveillance of health services, estimation of disease burden and prioritization of health resources. Several gaps in the availability of HIS for kidney disease were highlighted by the first iteration of the Global Kidney Health Atlas. Methods: As part of its second iteration, the International Society of Nephrology conducted a cross-sectional global survey between July and October 2018 to explore the coverage and scope of HIS for kidney disease, with a focus on kidney replacement therapy (KRT). Results: Out of a total of 182 invited countries, 154 countries responded to questions on HIS (85% response rate). KRT registries were available in almost all high-income countries, but few low-income countries, while registries for non-dialysis chronic kidney disease (CKD) or acute kidney injury (AKI) were rare. Registries in high-income countries tended to be national, in contrast to registries in low-income countries, which often operated at local or regional levels. Although cause of end-stage kidney disease, modality of KRT and source of kidney transplant donors were frequently reported, few countries collected data on patient-reported outcome measures and only half of low-income countries recorded process-based measures. Almost no countries had programs to detect AKI and practices to identify CKD-targeted individuals with diabetes, hypertension and cardiovascular disease, rather than members of high-risk ethnic groups. Conclusions: These findings confirm significant heterogeneity in the global availability of HIS for kidney disease and highlight important gaps in their coverage and scope, especially in low-income countries and across the domains of AKI, non-dialysis CKD, patient-reported outcomes, process-based measures and quality indicators for KRT service delivery. © 2020 The Author(s) 2020. Published by Oxford University Press on behalf of ERA-EDTA. All rights reserved.
Related Docs
2. Global Experience of Diabetes Registries: A Systematic Review, Advances in Experimental Medicine and Biology (2021)
4. Dental Implant Quality Registries and Databases: A Systematic Review, Journal of Education and Health Promotion (2021)
Experts (# of related papers)