Availability, Coverage, and Scope of Health Information Systems for Kidney Care Across World Countries and Regions

Availability, Coverage, and Scope of Health Information Systems for Kidney Care Across World Countries and Regions Publisher Pubmed

See EJ^{1, 2} ; Bello AK³ ; Levin A⁴ ; Lunney M⁵ ; Osman MA³ ; Ye F³ ; Ashuntantang GE⁶ ; Bellorinfont E⁷ ; Benghanem Gharbi M⁸ ; Davison S³ ; Ghnaimat M⁹ ; Harden P¹⁰ ; Htay H¹¹ ; Jha V^{12, 13} Show All Authors

See EJ^{1, 2}
Bello AK³
Levin A⁴
Lunney M⁵
Osman MA³
Ye F³
Ashuntantang GE⁶
Bellorinfont E⁷
Benghanem Gharbi M⁸
Davison S³
Ghnaimat M⁹
Harden P¹⁰
Htay H¹¹
Jha V^{12, 13}
Kalantarzadeh K¹⁴
Kerr PG^{15, 16}
Klarenbach S³
Kovesdy CP¹⁷
Luyckx V^{18, 19}
Neuen B²⁰
Odonoghue D^{21, 22}
Ossareh S²³
Perl J^{24, 25}
Rashid HU²⁶
Rondeau E^{27, 28}
Syed S³
Sola L²⁹
Tchokhonelidze I³⁰
Tesar V³¹
Tungsanga K^{32, 33}
Kazancioglu RT³⁴
Wang AYM³⁵
Yang CW³⁶
Zemchenkov A^{37, 38}
Zhao MH^{39, 40, 41, 42}
Jager KJ⁴³
Caskey F^{44, 45, 46}
Perkovic V⁴⁷
Jindal KK²
Okpechi IG^{48, 49}
Tonelli M^{50, 51}
Feehally J⁵²
Harris DC⁵³
Johnson DW^{54, 55, 56}

Show Affiliations

1. Department of Intensive Care, Austin Health, Melbourne, VIC, Australia
2. School of Medicine, University of Melbourne, Melbourne, VIC, Australia
3. Division of Nephrology and Immunology, Department of Medicine, University of Alberta, Edmonton, AB, Canada
4. Division of Nephrology, Department of Medicine, University of British Columbia, Vancouver, BC, Canada
5. Department of Community Health Sciences, University of Calgary, Calgary, AB, Canada
6. Faculty of Medicine and Biomedical Sciences, Yaounde General Hospital, University of Yaounde I, Yaounde, Cameroon
7. Division of Nephology and Hypertension, Department of Medicine, St Louis University, St Louis, MO, United States
8. Urinary Tract Diseases Department, Faculty of Medicine and Pharmacy of Casablanca, University Hassan II of Casablanca, Casablanca, Morocco
9. Nephrology Division, Department of Internal Medicine, The Specialty Hospital, Amman, Jordan
10. Oxford Kidney Unit, Oxford University Hospitals NHS Foundation Trust, Oxford, United Kingdom
11. Department of Renal Medicine, Singapore General Hospital, Singapore, Singapore
12. George Institute for Global Health India, New Delhi, India
13. Nuffield Department of Clinical Medicine, University of Oxford, Oxford, United Kingdom
14. Division of Nephrology and Hypertension, University of California, Irvine Medical Center, Orange, CA, United States
15. Monash Medical Centre, Department of Nephrology, Monash Health, Clayton, VIC, Australia
16. Department of Medicine, Monash University, Clayton, VIC, Australia
17. Department of Medicine, University of Tennessee, Health Science Center, Memphis, TN, United States
18. Institute of Biomedical Ethics and the History of Medicine, University of Zurich, Zurich, Switzerland
19. Renal Division, Harvard Medical School, Brigham and Women's Hospital, Boston, MA, United States
20. The George Institute for Global Health, Newtown, NSW, Australia
21. Salford Royal NHS Foundation Trust, Salford, United Kingdom
22. University of Manchester, Manchester, United Kingdom
23. Division of Nephrology, Hasheminejad Kidney Center, Department of Medicine, University of Medical Sciences, Tehran, Iran
24. Division of Nephrology, St Michael's Hospital, Keenan Research Centre, Li Ka Shing Knowledge Institute, Toronto, ON, Canada
25. Division of Nephrology, Department of Medicine, University of Toronto, Toronto, ON, Canada
26. Department of Nephrology, Kidney Foundation Hospital, Research Institute, Dhaka, Bangladesh
27. Intensive Care Nephrology and Transplantation Department, Assistance Publique-Hopitaux de Paris, Hopital Tenon, Paris, France
28. Sorbonne Universite, Paris, France
29. Dialysis Unit, CASMU-IAMPP, Montevideo, Uruguay
30. Nephrology Development Clinical Center, Tbilisi State Medical University, Tbilisi, Georgia
31. Department of Nephrology, General University Hospital, Charles University, Prague, Czech Republic
32. Department of Medicine, Faculty of Medicine, King Chulalong Memorial Hospital, Chulalongkorn University, Bangkok, Thailand
33. Bhumirajanagarindra Kidney Institute, Bangkok, Thailand
34. Division of Nephrology, Bezmialem Vakif University, Istanbul, Turkey
35. Department of Medicine, Queen Mary Hospital, The University of Hong Kong, Hong Kong
36. Kidney Research Center, Department of Nephrology, Chang Gung Memorial Hospital, Chang Gung University, College of Medicine, Taoyuan, Taiwan
37. Department of Internal Disease and Nephrology, North-Western State Medical University Named after I.I. Mechnikov, St Petersburg, Russian Federation
38. Department of Nephrology and Dialysis, Pavlov First Saint Petersburg State Medical University, St Petersburg, Russian Federation
39. Renal Division, Department of Medicine, Peking University First Hospital, Beijing, China
40. Key Laboratory of Renal Disease, Ministry of Health of China, Beijing, China
41. Key Laboratory of Chronic Kidney Disease Prevention and Treatment, Ministry of Education of China, Beijing, China
42. Peking-Tsinghua Center for Life Sciences (CLS), Beijing, China
43. ERA-EDTA Registry, Academic Medical Center, Department of Medical Informatics, Amsterdam Public Health Research Institute, University of Amsterdam, Amsterdam, Netherlands
44. UK Renal Registry, Learning and Research Building, Southmead Hospital, Bristol, United Kingdom
45. Population Health Sciences, University of Bristol, Bristol, United Kingdom
46. The Richard Bright Renal Unit, Southmead Hospital, North Bristol NHS Trust, Bristol, United Kingdom
47. The George Institute for Global Health, University of New South Wales Sydney, Sydney, NSW, Australia
48. Division of Nephrology and Hypertension, University of Cape Town, Cape Town, South Africa
49. Kidney and Hypertension Research Unit, University of Cape Town, Cape Town, South Africa
50. Department of Medicine, University of Calgary, Calgary, AB, Canada
51. Pan-American Health Organization, World Health Organization's Collaborating Centre in Prevention and Control of Chronic Kidney Disease, University of Calgary, Calgary, AB, Canada
52. University of Leicester, Leicester, United Kingdom
53. Centre for Transplantation and Renal Research, Westmead Institute for Medical Research, University of Sydney, Sydney, NSW, Australia
54. Centre for Kidney Disease Research, University of Queensland, Brisbane, QLD, Australia
55. Translational Research Institute, Brisbane, QLD, Australia
56. Metro South and Ipswich Nephrology and Transplant Services (MINTS), Princess Alexandra Hospital, Brisbane, QLD, Australia

Source: Nephrology Dialysis Transplantation Published:2022

Abstract

Background: Health information systems (HIS) are fundamental tools for the surveillance of health services, estimation of disease burden and prioritization of health resources. Several gaps in the availability of HIS for kidney disease were highlighted by the first iteration of the Global Kidney Health Atlas. Methods: As part of its second iteration, the International Society of Nephrology conducted a cross-sectional global survey between July and October 2018 to explore the coverage and scope of HIS for kidney disease, with a focus on kidney replacement therapy (KRT). Results: Out of a total of 182 invited countries, 154 countries responded to questions on HIS (85% response rate). KRT registries were available in almost all high-income countries, but few low-income countries, while registries for non-dialysis chronic kidney disease (CKD) or acute kidney injury (AKI) were rare. Registries in high-income countries tended to be national, in contrast to registries in low-income countries, which often operated at local or regional levels. Although cause of end-stage kidney disease, modality of KRT and source of kidney transplant donors were frequently reported, few countries collected data on patient-reported outcome measures and only half of low-income countries recorded process-based measures. Almost no countries had programs to detect AKI and practices to identify CKD-targeted individuals with diabetes, hypertension and cardiovascular disease, rather than members of high-risk ethnic groups. Conclusions: These findings confirm significant heterogeneity in the global availability of HIS for kidney disease and highlight important gaps in their coverage and scope, especially in low-income countries and across the domains of AKI, non-dialysis CKD, patient-reported outcomes, process-based measures and quality indicators for KRT service delivery. © 2020 The Author(s) 2020. Published by Oxford University Press on behalf of ERA-EDTA. All rights reserved.

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Style	Citing Format
MLA	See EJ, et al.. "Availability, Coverage, and Scope of Health Information Systems for Kidney Care Across World Countries and Regions." Nephrology Dialysis Transplantation, vol. 37, no. 1, 2022, pp. 159-167.
APA	See EJ, Bello AK, Levin A, Lunney M, Osman MA, Ye F, Ashuntantang GE, Bellorinfont E, Benghanem Gharbi M, Davison S, Ghnaimat M, Harden P, Htay H, Jha V, Kalantarzadeh K, Kerr PG, Klarenbach S, Kovesdy CP, Luyckx V, ... Johnson DW (2022). Availability, Coverage, and Scope of Health Information Systems for Kidney Care Across World Countries and Regions. Nephrology Dialysis Transplantation, 37(1), 159-167.
Chicago	See EJ, Bello AK, Levin A, Lunney M, Osman MA, Ye F, Ashuntantang GE, et al.. "Availability, Coverage, and Scope of Health Information Systems for Kidney Care Across World Countries and Regions." Nephrology Dialysis Transplantation 37, no. 1 (2022): 159-167.
Harvard	See EJ et al. (2022) 'Availability, Coverage, and Scope of Health Information Systems for Kidney Care Across World Countries and Regions', Nephrology Dialysis Transplantation, 37(1), pp. 159-167.
Vancouver	See EJ, Bello AK, Levin A, Lunney M, Osman MA, Ye F, et al.. Availability, Coverage, and Scope of Health Information Systems for Kidney Care Across World Countries and Regions. Nephrology Dialysis Transplantation. 2022;37(1):159-167.
BibTex	@article{ author = {See EJ and Bello AK and Levin A and Lunney M and Osman MA and Ye F and Ashuntantang GE and Bellorinfont E and Benghanem Gharbi M and Davison S and Ghnaimat M and Harden P and Htay H and Jha V and Kalantarzadeh K and Kerr PG and Klarenbach S and Kovesdy CP and Luyckx V and Neuen B and Odonoghue D and Ossareh S and Perl J and Rashid HU and Rondeau E and Syed S and Sola L and Tchokhonelidze I and Tesar V and Tungsanga K and Kazancioglu RT and Wang AYM and Yang CW and Zemchenkov A and Zhao MH and Jager KJ and Caskey F and Perkovic V and Jindal KK and Okpechi IG and Tonelli M and Feehally J and Harris DC and Johnson DW}, title = {Availability, Coverage, and Scope of Health Information Systems for Kidney Care Across World Countries and Regions}, journal = {Nephrology Dialysis Transplantation}, volume = {37}, number = {1}, pages = {159-167}, year = {2022} }
RIS	TY - JOUR AU - See EJ AU - Bello AK AU - Levin A AU - Lunney M AU - Osman MA AU - Ye F AU - Ashuntantang GE AU - Bellorinfont E AU - Benghanem Gharbi M AU - Davison S AU - Ghnaimat M AU - Harden P AU - Htay H AU - Jha V AU - Kalantarzadeh K AU - Kerr PG AU - Klarenbach S AU - Kovesdy CP AU - Luyckx V AU - Neuen B AU - Odonoghue D AU - Ossareh S AU - Perl J AU - Rashid HU AU - Rondeau E AU - Syed S AU - Sola L AU - Tchokhonelidze I AU - Tesar V AU - Tungsanga K AU - Kazancioglu RT AU - Wang AYM AU - Yang CW AU - Zemchenkov A AU - Zhao MH AU - Jager KJ AU - Caskey F AU - Perkovic V AU - Jindal KK AU - Okpechi IG AU - Tonelli M AU - Feehally J AU - Harris DC AU - Johnson DW TI - Availability, Coverage, and Scope of Health Information Systems for Kidney Care Across World Countries and Regions JO - Nephrology Dialysis Transplantation VL - 37 IS - 1 SP - 159 EP - 167 PY - 2022 ER -

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