A National Iranian Cochlear Implant Registry (Icir): Cochlear Implanted Recipient Observational Study

A National Iranian Cochlear Implant Registry (Icir): Cochlear Implanted Recipient Observational Study Publisher Pubmed

Saki N¹ ; Bayat A¹ ; Nikakhlagh S¹ ; Karimi M¹ ; Nikafrooz M^{2, 3} ; Daneshi A⁴ ; Zarandi MM⁵ ; Ajalloueyan M⁶ ; Hashemi SB⁷ ; Ghasemi MM⁸ ; Eftekharian A⁹ ; Abtahi SH¹⁰ ; Amizadeh M¹¹ ; Farahani F¹² Show All Authors

Saki N¹
Bayat A¹
Nikakhlagh S¹
Karimi M¹
Nikafrooz M^{2, 3}
Daneshi A⁴
Zarandi MM⁵
Ajalloueyan M⁶
Hashemi SB⁷
Ghasemi MM⁸
Eftekharian A⁹
Abtahi SH¹⁰
Amizadeh M¹¹
Farahani F¹²
Naderpour M¹³

Show Affiliations

1. Hearing Research Center, Ahvaz Jundishapur University of Medical Sciences, Ahvaz, Iran
2. Department of Education, University of Farhangian Teacher Education, Chamran Branch, Iran
3. Special Education Organization, Tehran, Iran
4. ENT and Head and Neck Research Center and Department, Five Senses Institute, Iran University of Medical Sciences, Tehran, Iran
5. Department of Cochlear Implant Center and Otorhinolaryngology, Tehran University of Medical Sciences, Tehran, Iran
6. Department of Otorhinolaryngology, Baqiyatallah University of Medical Sciences, Tehran, Iran
7. Department of Otorhinolaryngology, Shiraz University of Medical Sciences, Shiraz, Iran
8. Sinus and Surgical Endoscopic Research Center, Mashhad University of Medical Sciences, Mashhad, Iran
9. Department of Otorhinolaryngology, Shahid Beheshti University of Medical Sciences, Tehran, Iran
10. Department of Otolaryngology, Isfahan University of Medical Sciences, Isfahan, Iran
11. Department of Otorhinolaryngology Head and Neck Surgery, Kerman University of Medical Sciences, Kerman, Iran
12. Hearing Disorders Research Center, Hamadan University of Medical Sciences, Hamadan, Iran
13. Department of Otorhinolaryngology Head and Neck Surgery, Tabriz University of Medical Sciences, Tabriz, Iran

Source: International Tinnitus Journal Published:2019

Abstract

Background and Objective: Patients who receive cochlear implants (CIs) constitutes a significant population in Iran. This population needs regular monitor on long-term outcomes, educational placement and quality of life. Currently, there is no national or regional registry on the long term outcomes of CI users in Iran. The present study aims to introduce the design and implementation of a national patient-outcomes registry on CI recipients for Iran. This Iranian CI registry (ICIR) provides an integrated framework for data collection and sharing, scientific communication and collaboration in CI research. Methods: The national ICIR is a prospective patient-outcomes registry for patients who are implanted in one of Iranian centers. The registry is based on an integrated database that utilizes a secure web-based platform to collect response data from clinicians and patient's proxy via electronic case report forms (e-CRFs) at predefined intervals. The CI candidates are evaluated with a set of standardized and non-standardized questionnaires prior to initial device activation (as baseline variables) and at three-monthly interval follow-up intervals up to 24 months and annually thereafter. Results: The software application of the ICIR registry is designed in a user-friendly graphical interface with different entry fields. The collected data are categorized into four subsets including personal information, clinical data, surgery data and commission results. The main parameters include audiometric performance of patient, device use, patient comorbidities, device use, quality of life and health-related utilities, across different types of CI devices from different manufacturers. Conclusion: The ICIR database could be used by the increasingly growing network of CI centers in Iran. Clinicians, academic and industrial researchers as well as healthcare policy makers could use this database to develop more effective CI devices and better management of the recipients as well as to develop national guidelines. © 2019 International Tinnitus Journal. All rights reserved.

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Style	Citing Format
MLA	Saki N, et al.. "A National Iranian Cochlear Implant Registry (Icir): Cochlear Implanted Recipient Observational Study." International Tinnitus Journal, vol. 23, no. 2, 2019, pp. 74-78.
APA	Saki N, Bayat A, Nikakhlagh S, Karimi M, Nikafrooz M, Daneshi A, Zarandi MM, Ajalloueyan M, Hashemi SB, Ghasemi MM, Eftekharian A, Abtahi SH, Amizadeh M, Farahani F, Naderpour M (2019). A National Iranian Cochlear Implant Registry (Icir): Cochlear Implanted Recipient Observational Study. International Tinnitus Journal, 23(2), 74-78.
Chicago	Saki N, Bayat A, Nikakhlagh S, Karimi M, Nikafrooz M, Daneshi A, Zarandi MM, et al.. "A National Iranian Cochlear Implant Registry (Icir): Cochlear Implanted Recipient Observational Study." International Tinnitus Journal 23, no. 2 (2019): 74-78.
Harvard	Saki N et al. (2019) 'A National Iranian Cochlear Implant Registry (Icir): Cochlear Implanted Recipient Observational Study', International Tinnitus Journal, 23(2), pp. 74-78.
Vancouver	Saki N, Bayat A, Nikakhlagh S, Karimi M, Nikafrooz M, Daneshi A, et al.. A National Iranian Cochlear Implant Registry (Icir): Cochlear Implanted Recipient Observational Study. International Tinnitus Journal. 2019;23(2):74-78.
BibTex	@article{ author = {Saki N and Bayat A and Nikakhlagh S and Karimi M and Nikafrooz M and Daneshi A and Zarandi MM and Ajalloueyan M and Hashemi SB and Ghasemi MM and Eftekharian A and Abtahi SH and Amizadeh M and Farahani F and Naderpour M}, title = {A National Iranian Cochlear Implant Registry (Icir): Cochlear Implanted Recipient Observational Study}, journal = {International Tinnitus Journal}, volume = {23}, number = {2}, pages = {74-78}, year = {2019} }
RIS	TY - JOUR AU - Saki N AU - Bayat A AU - Nikakhlagh S AU - Karimi M AU - Nikafrooz M AU - Daneshi A AU - Zarandi MM AU - Ajalloueyan M AU - Hashemi SB AU - Ghasemi MM AU - Eftekharian A AU - Abtahi SH AU - Amizadeh M AU - Farahani F AU - Naderpour M TI - A National Iranian Cochlear Implant Registry (Icir): Cochlear Implanted Recipient Observational Study JO - International Tinnitus Journal VL - 23 IS - 2 SP - 74 EP - 78 PY - 2019 ER -

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