The Data Set Development for the National Spinal Cord Injury Registry of Iran (Nscir-Ir): Progress Toward Improving the Quality of Care

The Data Set Development for the National Spinal Cord Injury Registry of Iran (Nscir-Ir): Progress Toward Improving the Quality of Care Publisher Pubmed

Azadmanjir Z^{1, 2, 19} ; Jazayeri SB^{1, 3, 19} ; Habibi Arejan R^{1, 19} ; Ghodsi Z^{1, 19} ; Sharifalhoseini M^{1, 19} ; Kheiri G^{4, 5} ; Zendehdel K⁶ ; Safdarian M^{1, 19} ; Sadeghian F^{1, 7, 19} ; Khazaeipour Z^{8, 20} ; Naghdi K^{1, 19} ; Arab Kheradmand J⁹ ; Saadat S^{1, 19} ; Pirnejad H¹⁰ Show All Authors

Azadmanjir Z^{1, 2, 19}
Jazayeri SB^{1, 3, 19}
Habibi Arejan R^{1, 19}
Ghodsi Z^{1, 19}
Sharifalhoseini M^{1, 19}
Kheiri G^{4, 5}
Zendehdel K⁶
Safdarian M^{1, 19}
Sadeghian F^{1, 7, 19}
Khazaeipour Z^{8, 20}
Naghdi K^{1, 19}
Arab Kheradmand J⁹
Saadat S^{1, 19}
Pirnejad H¹⁰
Fazel MR¹¹
Fakharian E¹¹
Mohammadzadeh M¹¹
Sadeghinaini M^{1, 12, 19}
Saberi H^{8, 13, 20}
Derakhshan P¹⁴
Sabour H^{8, 20}
Benzel EC¹⁵
Oreilly G¹⁶
Noonan V¹⁷
Vaccaro AR¹⁸
Emamirazavi SH^{8, 20}
Rahimimovaghar V^{1, 8, 19, 20, 21}

Source: Spinal cord series and cases Published:2020

Abstract

STUDY DESIGN: Descriptive study. OBJECTIVES: The aim of this manuscript is to describe the development process of the data set for the National Spinal Cord Injury Registry of Iran (NSCIR-IR). SETTING: SCI community in Iran. METHODS: The NSCIR-IR data set was developed in 8 months, from March 2015 to October 2015. An expert panel of 14 members was formed. After a review of data sets of similar registries in developed countries, the selection and modification of the basic framework were performed over 16 meetings, based on the objectives and feasibility of the registry. RESULTS: The final version of the data set was composed of 376 data elements including sociodemographic, hospital admission, injury incidence, prehospital procedures, emergency department visit, medical history, vertebral injury, spinal cord injury details, interventions, complications, and discharge data. It also includes 163 components of the International Standards for the Neurologic Classification of Spinal Cord Injury (ISNCSCI) and 65 data elements related to quality of life, pressure ulcers, pain, and spasticity. CONCLUSION: The NSCIR-IR data set was developed in order to meet the quality improvement objectives of the registry. The process was centered around choosing the data elements assessing care provided to individuals in the acute and chronic phases of SCI in hospital settings. The International Spinal Cord Injury Data Set was selected as a basic framework, helped by comparison with data from other countries. Expert panel modifications facilitated the implementation of the registry process with the current clinical workflow in hospitals.

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Experts (# of related papers)

View all Related Experts

Vafa Rahimi-Movaghar (13)

Zahra Azadmanjir (9)

Style	Citing Format
MLA	Azadmanjir Z, et al.. "The Data Set Development for the National Spinal Cord Injury Registry of Iran (Nscir-Ir): Progress Toward Improving the Quality of Care." Spinal cord series and cases, vol. 6, no. 1, 2020, pp. 17-.
APA	Azadmanjir Z, Jazayeri SB, Habibi Arejan R, Ghodsi Z, Sharifalhoseini M, Kheiri G, Zendehdel K, Safdarian M, Sadeghian F, Khazaeipour Z, Naghdi K, Arab Kheradmand J, Saadat S, Pirnejad H, Fazel MR, Fakharian E, Mohammadzadeh M, Sadeghinaini M, Saberi H, ... Rahimimovaghar V (2020). The Data Set Development for the National Spinal Cord Injury Registry of Iran (Nscir-Ir): Progress Toward Improving the Quality of Care. Spinal cord series and cases, 6(1), 17-.
Chicago	Azadmanjir Z, Jazayeri SB, Habibi Arejan R, Ghodsi Z, Sharifalhoseini M, Kheiri G, Zendehdel K, et al.. "The Data Set Development for the National Spinal Cord Injury Registry of Iran (Nscir-Ir): Progress Toward Improving the Quality of Care." Spinal cord series and cases 6, no. 1 (2020): 17-.
Harvard	Azadmanjir Z et al. (2020) 'The Data Set Development for the National Spinal Cord Injury Registry of Iran (Nscir-Ir): Progress Toward Improving the Quality of Care', Spinal cord series and cases, 6(1), pp. 17-.
Vancouver	Azadmanjir Z, Jazayeri SB, Habibi Arejan R, Ghodsi Z, Sharifalhoseini M, Kheiri G, et al.. The Data Set Development for the National Spinal Cord Injury Registry of Iran (Nscir-Ir): Progress Toward Improving the Quality of Care. Spinal cord series and cases. 2020;6(1):17-.
BibTex	@article{ author = {Azadmanjir Z and Jazayeri SB and Habibi Arejan R and Ghodsi Z and Sharifalhoseini M and Kheiri G and Zendehdel K and Safdarian M and Sadeghian F and Khazaeipour Z and Naghdi K and Arab Kheradmand J and Saadat S and Pirnejad H and Fazel MR and Fakharian E and Mohammadzadeh M and Sadeghinaini M and Saberi H and Derakhshan P and Sabour H and Benzel EC and Oreilly G and Noonan V and Vaccaro AR and Emamirazavi SH and Rahimimovaghar V}, title = {The Data Set Development for the National Spinal Cord Injury Registry of Iran (Nscir-Ir): Progress Toward Improving the Quality of Care}, journal = {Spinal cord series and cases}, volume = {6}, number = {1}, pages = {17-}, year = {2020} }
RIS	TY - JOUR AU - Azadmanjir Z AU - Jazayeri SB AU - Habibi Arejan R AU - Ghodsi Z AU - Sharifalhoseini M AU - Kheiri G AU - Zendehdel K AU - Safdarian M AU - Sadeghian F AU - Khazaeipour Z AU - Naghdi K AU - Arab Kheradmand J AU - Saadat S AU - Pirnejad H AU - Fazel MR AU - Fakharian E AU - Mohammadzadeh M AU - Sadeghinaini M AU - Saberi H AU - Derakhshan P AU - Sabour H AU - Benzel EC AU - Oreilly G AU - Noonan V AU - Vaccaro AR AU - Emamirazavi SH AU - Rahimimovaghar V TI - The Data Set Development for the National Spinal Cord Injury Registry of Iran (Nscir-Ir): Progress Toward Improving the Quality of Care JO - Spinal cord series and cases VL - 6 IS - 1 SP - 17 EP - PY - 2020 ER -

Style

Citing Format

MLA

Azadmanjir Z, et al.. "The Data Set Development for the National Spinal Cord Injury Registry of Iran (Nscir-Ir): Progress Toward Improving the Quality of Care." Spinal cord series and cases, vol. 6, no. 1, 2020, pp. 17-.

APA

Azadmanjir Z, Jazayeri SB, Habibi Arejan R, Ghodsi Z, Sharifalhoseini M, Kheiri G, Zendehdel K, Safdarian M, Sadeghian F, Khazaeipour Z, Naghdi K, Arab Kheradmand J, Saadat S, Pirnejad H, Fazel MR, Fakharian E, Mohammadzadeh M, Sadeghinaini M, Saberi H, ... Rahimimovaghar V (2020). The Data Set Development for the National Spinal Cord Injury Registry of Iran (Nscir-Ir): Progress Toward Improving the Quality of Care. Spinal cord series and cases, 6(1), 17-.

Chicago

Azadmanjir Z, Jazayeri SB, Habibi Arejan R, Ghodsi Z, Sharifalhoseini M, Kheiri G, Zendehdel K, et al.. "The Data Set Development for the National Spinal Cord Injury Registry of Iran (Nscir-Ir): Progress Toward Improving the Quality of Care." Spinal cord series and cases 6, no. 1 (2020): 17-.

Harvard

Azadmanjir Z et al. (2020) 'The Data Set Development for the National Spinal Cord Injury Registry of Iran (Nscir-Ir): Progress Toward Improving the Quality of Care', Spinal cord series and cases, 6(1), pp. 17-.

Vancouver

Azadmanjir Z, Jazayeri SB, Habibi Arejan R, Ghodsi Z, Sharifalhoseini M, Kheiri G, et al.. The Data Set Development for the National Spinal Cord Injury Registry of Iran (Nscir-Ir): Progress Toward Improving the Quality of Care. Spinal cord series and cases. 2020;6(1):17-.

BibTex

@article{ author = {Azadmanjir Z and Jazayeri SB and Habibi Arejan R and Ghodsi Z and Sharifalhoseini M and Kheiri G and Zendehdel K and Safdarian M and Sadeghian F and Khazaeipour Z and Naghdi K and Arab Kheradmand J and Saadat S and Pirnejad H and Fazel MR and Fakharian E and Mohammadzadeh M and Sadeghinaini M and Saberi H and Derakhshan P and Sabour H and Benzel EC and Oreilly G and Noonan V and Vaccaro AR and Emamirazavi SH and Rahimimovaghar V}, title = {The Data Set Development for the National Spinal Cord Injury Registry of Iran (Nscir-Ir): Progress Toward Improving the Quality of Care}, journal = {Spinal cord series and cases}, volume = {6}, number = {1}, pages = {17-}, year = {2020} }

RIS

TY - JOUR
AU - Azadmanjir Z
AU - Jazayeri SB
AU - Habibi Arejan R
AU - Ghodsi Z
AU - Sharifalhoseini M
AU - Kheiri G
AU - Zendehdel K
AU - Safdarian M
AU - Sadeghian F
AU - Khazaeipour Z
AU - Naghdi K
AU - Arab Kheradmand J
AU - Saadat S
AU - Pirnejad H
AU - Fazel MR
AU - Fakharian E
AU - Mohammadzadeh M
AU - Sadeghinaini M
AU - Saberi H
AU - Derakhshan P
AU - Sabour H
AU - Benzel EC
AU - Oreilly G
AU - Noonan V
AU - Vaccaro AR
AU - Emamirazavi SH
AU - Rahimimovaghar V
TI - The Data Set Development for the National Spinal Cord Injury Registry of Iran (Nscir-Ir): Progress Toward Improving the Quality of Care
JO - Spinal cord series and cases
VL - 6
IS - 1
SP - 17
EP -
PY - 2020
ER -

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Authors

Abstract