The Data Set Development for the National Spinal Cord Injury Registry of Iran (Nscir-Ir): Progress Toward Improving the Quality of Care

The Data Set Development for the National Spinal Cord Injury Registry of Iran (Nscir-Ir): Progress Toward Improving the Quality of Care Publisher Pubmed

Azadmanjir Z^{1, 2, 19} ; Jazayeri SB^{1, 3, 19} ; Habibi Arejan R^{1, 19} ; Ghodsi Z^{1, 19} ; Sharifalhoseini M^{1, 19} ; Kheiri G^{4, 5} ; Zendehdel K⁶ ; Safdarian M^{1, 19} ; Sadeghian F^{1, 7, 19} ; Khazaeipour Z^{8, 20} ; Naghdi K^{1, 19} ; Arab Kheradmand J⁹ ; Saadat S^{1, 19} ; Pirnejad H¹⁰ Show All Authors

Azadmanjir Z^{1, 2, 19}
Jazayeri SB^{1, 3, 19}
Habibi Arejan R^{1, 19}
Ghodsi Z^{1, 19}
Sharifalhoseini M^{1, 19}
Kheiri G^{4, 5}
Zendehdel K⁶
Safdarian M^{1, 19}
Sadeghian F^{1, 7, 19}
Khazaeipour Z^{8, 20}
Naghdi K^{1, 19}
Arab Kheradmand J⁹
Saadat S^{1, 19}
Pirnejad H¹⁰
Fazel MR¹¹
Fakharian E¹¹
Mohammadzadeh M¹¹
Sadeghinaini M^{1, 12, 19}
Saberi H^{8, 13, 20}
Derakhshan P¹⁴
Sabour H^{8, 20}
Benzel EC¹⁵
Oreilly G¹⁶
Noonan V¹⁷
Vaccaro AR¹⁸
Emamirazavi SH^{8, 20}
Rahimimovaghar V^{1, 8, 19, 20, 21}

Show Affiliations

1. Sina Trauma and Surgery Research Center, Tehran University of Medical Sciences, Tehran, Iran
2. Department of Health Information Management, School of Allied Medical Sciences, Tehran University of Medical Sciences, Tehran, Iran
3. Department of Urology, University of Florida, FL, Jacksonville, United States
4. School of Medicine, Tehran University of Medical Sciences, Tehran, Iran
5. Student's Scientific Research Center (SSRC), Tehran University of Medical Sciences, Tehran, Iran
6. Cancer Research Center, Cancer Institute, Tehran University of Medical Sciences, Tehran, Iran
7. Center for Health Related Social and Behavioral Science Research, Shahroud University of Medical Sciences, Iran
8. Brain and Spinal Cord Injury Research Center, Neuroscience Institute, Tehran University of Medical Sciences, Tehran, Iran
9. Ahya Neuroscience Research Center, Tehran, Iran
10. Health Information Technology Department, Urmia University of Medical Sciences, Iran
11. Trauma Research Center, Kashan University of Medical Sciences, Iran
12. Shahid Beheshti University of Medical Science, Tehran, Iran
13. Department of Neurosurgery Imam Khomeini Hospital, Tehran University of Medical Sciences, Tehran, Iran
14. Student Research Committee, School of Medicine, Iran University of Medical Sciences, Tehran, Iran
15. Department of Neurosurgery, Cleveland Clinic Foundation, Cleveland, OH, USA
16. Department of Epidemiology and Preventive Medicine, School of Public Health and Preventive Medicine, Monash University, Melbourne, Australia
17. Rick Hansen Institute, University of British Columbia, Vancouver, Canada
18. Department of Orthopedic Surgery, Rothman Institute, Thomas Jefferson University, PA, Philadelphia, United States
19. Sina Trauma and Surgery Research Center, Tehran University of Medical Sciences, Tehran, Iran
20. Brain and Spinal Cord Injury Research Center, Neuroscience Institute, Tehran University of Medical Sciences, Tehran, Iran
21. Department of Neurosurgery, Shariati Hospital, Tehran University of Medical Sciences, Tehran, Iran

Source: Spinal cord series and cases Published:2020

Abstract

STUDY DESIGN: Descriptive study. OBJECTIVES: The aim of this manuscript is to describe the development process of the data set for the National Spinal Cord Injury Registry of Iran (NSCIR-IR). SETTING: SCI community in Iran. METHODS: The NSCIR-IR data set was developed in 8 months, from March 2015 to October 2015. An expert panel of 14 members was formed. After a review of data sets of similar registries in developed countries, the selection and modification of the basic framework were performed over 16 meetings, based on the objectives and feasibility of the registry. RESULTS: The final version of the data set was composed of 376 data elements including sociodemographic, hospital admission, injury incidence, prehospital procedures, emergency department visit, medical history, vertebral injury, spinal cord injury details, interventions, complications, and discharge data. It also includes 163 components of the International Standards for the Neurologic Classification of Spinal Cord Injury (ISNCSCI) and 65 data elements related to quality of life, pressure ulcers, pain, and spasticity. CONCLUSION: The NSCIR-IR data set was developed in order to meet the quality improvement objectives of the registry. The process was centered around choosing the data elements assessing care provided to individuals in the acute and chronic phases of SCI in hospital settings. The International Spinal Cord Injury Data Set was selected as a basic framework, helped by comparison with data from other countries. Expert panel modifications facilitated the implementation of the registry process with the current clinical workflow in hospitals.

Style	Citing Format
MLA	Azadmanjir Z, et al.. "The Data Set Development for the National Spinal Cord Injury Registry of Iran (Nscir-Ir): Progress Toward Improving the Quality of Care." Spinal cord series and cases, vol. 6, no. 1, 2020, pp. 17-.
APA	Azadmanjir Z, Jazayeri SB, Habibi Arejan R, Ghodsi Z, Sharifalhoseini M, Kheiri G, Zendehdel K, Safdarian M, Sadeghian F, Khazaeipour Z, Naghdi K, Arab Kheradmand J, Saadat S, Pirnejad H, Fazel MR, Fakharian E, Mohammadzadeh M, Sadeghinaini M, Saberi H, ... Rahimimovaghar V (2020). The Data Set Development for the National Spinal Cord Injury Registry of Iran (Nscir-Ir): Progress Toward Improving the Quality of Care. Spinal cord series and cases, 6(1), 17-.
Chicago	Azadmanjir Z, Jazayeri SB, Habibi Arejan R, Ghodsi Z, Sharifalhoseini M, Kheiri G, Zendehdel K, et al.. "The Data Set Development for the National Spinal Cord Injury Registry of Iran (Nscir-Ir): Progress Toward Improving the Quality of Care." Spinal cord series and cases 6, no. 1 (2020): 17-.
Harvard	Azadmanjir Z et al. (2020) 'The Data Set Development for the National Spinal Cord Injury Registry of Iran (Nscir-Ir): Progress Toward Improving the Quality of Care', Spinal cord series and cases, 6(1), pp. 17-.
Vancouver	Azadmanjir Z, Jazayeri SB, Habibi Arejan R, Ghodsi Z, Sharifalhoseini M, Kheiri G, et al.. The Data Set Development for the National Spinal Cord Injury Registry of Iran (Nscir-Ir): Progress Toward Improving the Quality of Care. Spinal cord series and cases. 2020;6(1):17-.
BibTex	@article{ author = {Azadmanjir Z and Jazayeri SB and Habibi Arejan R and Ghodsi Z and Sharifalhoseini M and Kheiri G and Zendehdel K and Safdarian M and Sadeghian F and Khazaeipour Z and Naghdi K and Arab Kheradmand J and Saadat S and Pirnejad H and Fazel MR and Fakharian E and Mohammadzadeh M and Sadeghinaini M and Saberi H and Derakhshan P and Sabour H and Benzel EC and Oreilly G and Noonan V and Vaccaro AR and Emamirazavi SH and Rahimimovaghar V}, title = {The Data Set Development for the National Spinal Cord Injury Registry of Iran (Nscir-Ir): Progress Toward Improving the Quality of Care}, journal = {Spinal cord series and cases}, volume = {6}, number = {1}, pages = {17-}, year = {2020} }
RIS	TY - JOUR AU - Azadmanjir Z AU - Jazayeri SB AU - Habibi Arejan R AU - Ghodsi Z AU - Sharifalhoseini M AU - Kheiri G AU - Zendehdel K AU - Safdarian M AU - Sadeghian F AU - Khazaeipour Z AU - Naghdi K AU - Arab Kheradmand J AU - Saadat S AU - Pirnejad H AU - Fazel MR AU - Fakharian E AU - Mohammadzadeh M AU - Sadeghinaini M AU - Saberi H AU - Derakhshan P AU - Sabour H AU - Benzel EC AU - Oreilly G AU - Noonan V AU - Vaccaro AR AU - Emamirazavi SH AU - Rahimimovaghar V TI - The Data Set Development for the National Spinal Cord Injury Registry of Iran (Nscir-Ir): Progress Toward Improving the Quality of Care JO - Spinal cord series and cases VL - 6 IS - 1 SP - 17 EP - PY - 2020 ER -

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Abstract