Lived Experiences of Mothers Caring for Children With Burn-Induced Disabilities Publisher



Shoghi M¹ ; Borimnejad L¹ ; Delfani F²
Source: Anaesthesia# Pain and Intensive Care Published:2023

Abstract

Objective: Burn itself is a highly painful phenomenon, but even well after the burn wounds have healed, the resultant disabilities in children continue to tax the patience and the ability to care of the mothers of handicapped children. The present study was conducted to explain and interpret mothers' experiences in caring for children with burn-induced disabilities with the interpretive phenomenological method. Methodology: The research population included the mothers of children with burn-induced disabilities selected through purposive sampling. Face-to-face unstructured interviews were conducted and recorded with an interview guide, and data saturation was achieved after interviewing six mothers. Data were analyzed based on Dickelman’s method. Results: The analysis of the data extracted from the interviews revealed that mothers’ lived experience of caring for children with burn-induced disabilities could generally be divided into five themes: 1) psycho-emotional breakdown, 2) trying to maintain increasing distress, 3) life continuation in the meaning of care and compensation, 4) raising the child in the care bed, and 5) attention and trying to reach the goal despite the disability. Conclusion: Mothers of children with burn-induced disabilities experience a wide range of emotions, concerns, and experiences. It's important to acknowledge and understand these feelings to ensure the well-being of both the mothers and their children. © 2023 Faculty of Anaesthesia, Pain and Intensive Care, AFMS. All rights reserved.