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The Impact of Data Quality Assurance and Control Solutions on the Completeness, Accuracy, and Consistency of Data in a National Spinal Cord Injury Registry of Iran (Nscir-Ir) Publisher Pubmed



Derakhshan P1 ; Azadmanjir Z1, 2 ; Naghdi K1 ; Habibi Arejan R1 ; Safdarian M1 ; Zarei MR1 ; Jazayeri SB1 ; Sharifalhoseini M1 ; Arab Kheradmand J3 ; Amirjamshidi A4 ; Ghodsi Z1 ; Faghih Jooybari M5 ; Mohammadzadeh M6 ; Khazaeipour Z7 Show All Authors
Authors
  1. Derakhshan P1
  2. Azadmanjir Z1, 2
  3. Naghdi K1
  4. Habibi Arejan R1
  5. Safdarian M1
  6. Zarei MR1
  7. Jazayeri SB1
  8. Sharifalhoseini M1
  9. Arab Kheradmand J3
  10. Amirjamshidi A4
  11. Ghodsi Z1
  12. Faghih Jooybari M5
  13. Mohammadzadeh M6
  14. Khazaeipour Z7
  15. Abdollah Zadegan S1
  16. Abedi A8
  17. Oreilly G9
  18. Noonan V10
  19. Benzel EC11
  20. Vaccaro AR12
  21. Sadeghian F13
  22. Rahimimovaghar V1, 7
Show Affiliations
Authors Affiliations
  1. 1. Sina Trauma and Surgery Research Center, Tehran University of Medical Sciences, Tehran, Iran
  2. 2. Department of Health Information Management, School of Allied Medical Sciences, Tehran University of Medical Sciences, Tehran, Iran
  3. 3. Ahya Neuroscience Research Center, Tehran, Iran
  4. 4. Department of Neurosurgery, Sina Hospital, Tehran University of Medical Sciences, Tehran, Iran
  5. 5. Department of Neurosurgery, Shariati Hospital, Tehran University of Medical Sciences, Tehran, Iran
  6. 6. Trauma Research Center, Kashan University of Medical Sciences, Kashan, Iran
  7. 7. Brain and Spinal Injuries Research Center (BASIR), Imam Khomeini Hospital, Tehran University of Medical Sciences, Tehran, Iran
  8. 8. Department of Orthopaedic Surgery, Keck School of Medicine, University of Southern California, Los Angeles, 90033, CA, United States
  9. 9. Department of Epidemiology and Preventive Medicine, School of Public Health and Preventive Medicine, Monash University, Melbourne, 3800, VIC, Australia
  10. 10. Rick Hansen Institute, University of British Columbia, Vancouver, V6T 1Z4, BC, Canada
  11. 11. Department of Neurosurgery, Cleveland Clinic Foundation, Cleveland, 44195, OH, United States
  12. 12. Department of Orthopaedic Surgery, The Rothman Institute, Thomas Jefferson University, Philadelphia, 19107, PA, United States
  13. 13. Center for Health Related Social and Behavioral Sciences Research, Shahroud University of Medical Sciences, Shahroud, Iran

Source: Spinal Cord Series and Cases Published:2021


Abstract

Study design:: Descriptive study. Objective:: This study aimed to develop and evaluate a systematic arrangement for improvement and monitoring of data quality of the National Spinal Cord (and Column) Injury Registry of Iran (NSCIR-IR)—a multicenter hospital-based registry. Setting:: SCI community in Iran. Methods:: Quality assurance and quality control were the primary objectives in improving overall quality of data that were considered in designing a paper-based and computerized case report. To prevent incorrect data entry, we implemented several validation algorithms, including 70 semantic rules, 18 syntactic rules, seven temporal rules, and 13 rules for acceptable value range. Qualified and trained staff members were also employed to review and identify any defect, inaccuracy, or inconsistency in the data to improve data quality. A set of functions were implemented in the software to cross-validate, and feedback on data was provided by reviewers and registrars. Results:: Socio-demographic data items were 100% complete, except for national ID and education level, which were 97% and 92.3% complete, respectively. Completeness of admission data and emergency medical services data were 100% except for arrival and transfer time (99.4%) and oxygen saturation (48.9%). Evaluation of data received from two centers located in Tehran proved to be 100% accurate following validation by quality reviewers. All data was also found to be 100% consistent. Conclusions:: This approach to quality assurance and consistency validation proved to be effective. Our solutions resulted in a significant decrease in the number of missing data. © 2020, The Author(s), under exclusive licence to International Spinal Cord Society.