Feasibility and Data Quality of the National Spinal Cord Injury Registry of Iran (Nscir-Ir): A Pilot Study

Feasibility and Data Quality of the National Spinal Cord Injury Registry of Iran (Nscir-Ir): A Pilot Study Pubmed

Naghdi K¹ ; Azadmanjir Z² ; Saadat S¹ ; Abedi A¹ ; Habibi SK² ; Derakhshan P¹ ; Safdarian M¹ ; Zadegan SA¹ ; Amirjamshidi A³ ; Sharifalhoseini M¹ ; Kheradmand JA⁴ ; Mohammadzadeh M⁵ ; Zendehdel K⁶ ; Khazaeipour Z⁷ Show All Authors

Naghdi K¹
Azadmanjir Z²
Saadat S¹
Abedi A¹
Habibi SK²
Derakhshan P¹
Safdarian M¹
Zadegan SA¹
Amirjamshidi A³
Sharifalhoseini M¹
Kheradmand JA⁴
Mohammadzadeh M⁵
Zendehdel K⁶
Khazaeipour Z⁷
Hashemi SMR⁸
Saberi H⁷
Yarandi KK³
Ketabchi SE³
Yousefzadehchabok S⁹
Heidari H⁹
Sotodeh A¹⁰
Pestei K¹¹
Ghodsi Z¹
Sadeghian F¹
Noonan V¹²
Benzel EC¹³
Oreilly G¹⁴
Chapman J¹⁵
Hagen EM^{16, 17, 18, 19}
Fehlings MG²⁰
Vaccaro AR²¹
Jooybari MF²²
Zarei MR¹
Zafarghandi MR¹
Salamati P¹
Nezareh S²³
Khormali M¹
Sadeghinaini M¹
Jazayeri SB¹
Aarabi B²⁴
Rahimimovaghar V¹

Show Affiliations

1. Sina Trauma and Surgery Research Center, Tehran University of Medical Sciences, Tehran, Iran
2. Department of Health Information Management, School of Allied Medical Sciences, Tehran University of Medical Sciences, Tehran, Iran
3. Department of Neurosurgery, Sina Hospital, Tehran University of Medical Sciences, Tehran, Iran
4. Ahya Neuroscience Research Center, Tehran, Iran
5. Trauma Research Center, Kashan University of Medical Sciences, Kashan, Iran
6. Cancer Research Center, Cancer Institute, Tehran University of Medical Sciences, Tehran, Iran
7. Brain and Spinal Injuries Research Center (BASIR), Imam Khomeini Hospital, Tehran University of Medical Sciences, Tehran, Iran
8. Department of Neurosurgery, Firoozgar General Hospital, Iran University of Medical Science, Tehran, Iran
9. Guilan Road Trauma Research Center (GRTRC), Guilan University of Medical Sciences, Rasht, Iran
10. Poursina Hospital, Guilan University of Medical Sciences, Rasht, Iran
11. Department of Anesthesiology, Tehran University of Medical Sciences, Tehran, Iran
12. Rick Hansen Institute, University of British Columbia, Vancouver, BC, Canada
13. Cleveland Clinic Foundation, Department of Neurosurgery, Cleveland, OH, United States
14. Department of Epidemiology and Preventive Medicine, School of Public Health and Preventive Medicine, Monash University, Melbourne, Australia
15. Swedish Neuroscience Institute, Swedish Medical Center, Seattle, WA, United States
16. Autonomic Unit, National Hospital for Neurology and Neurosurgery, Queen Square, London, United Kingdom
17. Institute of Neurology, University College London, United Kingdom
18. Department of Neurology, Regional Hospital of Viborg, Viborg, Denmark
19. Department of Clinical Medicine Aarhus University, Aarhus, Denmark
20. Toronto Western Hospital, University Health Network, Toronto, ON, Canada
21. Department of Orthopaedic Surgery, Rothman Institute, Thomas Jefferson University, Philadelphia, United States
22. Department of Neurosurgery, Shariati Hospital, Tehran University of Medical Sciences, Tehran, Iran
23. Cloudware Company, Ltd, Tehran, Iran
24. Department of Neurosurgery, University of Maryland School of Medicine, Baltimore, MD, United States

Source: Archives of Iranian Medicine Published:2017

Abstract

Background: Spinal cord injury (SCI) is one of the most disabling consequences of trauma with unparalleled economic, social, and personal burden. Any attempt aimed at improving quality of care should be based on comprehensive and reliable data. This pilot investigation studied the feasibility of implementing the National Spinal Cord and Column Injury Registry of Iran (NSCIR-IR) and scrutinized the quality of the registered data. Methods: From October 2015 to May 2016, over an 8-month period, 65 eligible trauma patients who were admitted to hospitals in three academic centers in mainland Iran were included in this pilot study. Certified registered nurses and neurosurgeons were in charge of data collection, quality verification, and registration. Results: Sixty-five patients with vertebral column fracture dislocations were registered in the study, of whom 14 (21.5%) patients had evidence of SCI. Mechanisms of injury included mechanical falls in 30 patients (46.2%) and motor vehicle accidents in 29 (44.6%). The case identification rate i.e. clinical and radiographic confirmation of spine and SCI, ranged from 10.0% to 88.9% in different registry centers. The completion rate of all data items was 100%, except for five data elements in patients who could not provide clinical information because of their medical status. Consistency i.e. identification of the same elements by all the registrars, was 100% and accuracy of identification of the same pathology ranged from 66.6% to 100%. Conclusions: Our pilot study showed both the feasibility and acceptable data quality of the NSCIR-IR. However, effective and successful implementation of NSCIR-IR data use requires some modifications such as presence of a dedicated registrar in each center, verification of data by a neurosurgeon, and continuous assessment of patients’ neurological status and complications. © 2017, Academy of Medical Sciences of I.R. Iran. All rights reserved.

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Style	Citing Format
MLA	Naghdi K, et al.. "Feasibility and Data Quality of the National Spinal Cord Injury Registry of Iran (Nscir-Ir): A Pilot Study." Archives of Iranian Medicine, vol. 20, no. 8, 2017, pp. 494-502.
APA	Naghdi K, Azadmanjir Z, Saadat S, Abedi A, Habibi SK, Derakhshan P, Safdarian M, Zadegan SA, Amirjamshidi A, Sharifalhoseini M, Kheradmand JA, Mohammadzadeh M, Zendehdel K, Khazaeipour Z, Hashemi SMR, Saberi H, Yarandi KK, Ketabchi SE, Yousefzadehchabok S, ... Rahimimovaghar V (2017). Feasibility and Data Quality of the National Spinal Cord Injury Registry of Iran (Nscir-Ir): A Pilot Study. Archives of Iranian Medicine, 20(8), 494-502.
Chicago	Naghdi K, Azadmanjir Z, Saadat S, Abedi A, Habibi SK, Derakhshan P, Safdarian M, et al.. "Feasibility and Data Quality of the National Spinal Cord Injury Registry of Iran (Nscir-Ir): A Pilot Study." Archives of Iranian Medicine 20, no. 8 (2017): 494-502.
Harvard	Naghdi K et al. (2017) 'Feasibility and Data Quality of the National Spinal Cord Injury Registry of Iran (Nscir-Ir): A Pilot Study', Archives of Iranian Medicine, 20(8), pp. 494-502.
Vancouver	Naghdi K, Azadmanjir Z, Saadat S, Abedi A, Habibi SK, Derakhshan P, et al.. Feasibility and Data Quality of the National Spinal Cord Injury Registry of Iran (Nscir-Ir): A Pilot Study. Archives of Iranian Medicine. 2017;20(8):494-502.
BibTex	@article{ author = {Naghdi K and Azadmanjir Z and Saadat S and Abedi A and Habibi SK and Derakhshan P and Safdarian M and Zadegan SA and Amirjamshidi A and Sharifalhoseini M and Kheradmand JA and Mohammadzadeh M and Zendehdel K and Khazaeipour Z and Hashemi SMR and Saberi H and Yarandi KK and Ketabchi SE and Yousefzadehchabok S and Heidari H and Sotodeh A and Pestei K and Ghodsi Z and Sadeghian F and Noonan V and Benzel EC and Oreilly G and Chapman J and Hagen EM and Fehlings MG and Vaccaro AR and Jooybari MF and Zarei MR and Zafarghandi MR and Salamati P and Nezareh S and Khormali M and Sadeghinaini M and Jazayeri SB and Aarabi B and Rahimimovaghar V}, title = {Feasibility and Data Quality of the National Spinal Cord Injury Registry of Iran (Nscir-Ir): A Pilot Study}, journal = {Archives of Iranian Medicine}, volume = {20}, number = {8}, pages = {494-502}, year = {2017} }
RIS	TY - JOUR AU - Naghdi K AU - Azadmanjir Z AU - Saadat S AU - Abedi A AU - Habibi SK AU - Derakhshan P AU - Safdarian M AU - Zadegan SA AU - Amirjamshidi A AU - Sharifalhoseini M AU - Kheradmand JA AU - Mohammadzadeh M AU - Zendehdel K AU - Khazaeipour Z AU - Hashemi SMR AU - Saberi H AU - Yarandi KK AU - Ketabchi SE AU - Yousefzadehchabok S AU - Heidari H AU - Sotodeh A AU - Pestei K AU - Ghodsi Z AU - Sadeghian F AU - Noonan V AU - Benzel EC AU - Oreilly G AU - Chapman J AU - Hagen EM AU - Fehlings MG AU - Vaccaro AR AU - Jooybari MF AU - Zarei MR AU - Zafarghandi MR AU - Salamati P AU - Nezareh S AU - Khormali M AU - Sadeghinaini M AU - Jazayeri SB AU - Aarabi B AU - Rahimimovaghar V TI - Feasibility and Data Quality of the National Spinal Cord Injury Registry of Iran (Nscir-Ir): A Pilot Study JO - Archives of Iranian Medicine VL - 20 IS - 8 SP - 494 EP - 502 PY - 2017 ER -

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