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Gathering Global Perspectives to Establish the Research Priorities and Minimum Data Sets for Degenerative Cervical Myelopathy: Sampling Strategy of the First Round Consensus Surveys of Ao Spine Recode-Dcm Publisher



Mowforth OD1 ; Khan DZ1 ; Wong MY2 ; Pickering GAE3 ; Dean L2 ; Magee J2 ; Mullarkey L2 ; Hirayama Y2 ; Rihova M2 ; Stewart M2 ; Goulson B2 ; Ahmed S2 ; Fricke K2 ; Popanimigean V2 Show All Authors
Authors
  1. Mowforth OD1
  2. Khan DZ1
  3. Wong MY2
  4. Pickering GAE3
  5. Dean L2
  6. Magee J2
  7. Mullarkey L2
  8. Hirayama Y2
  9. Rihova M2
  10. Stewart M2
  11. Goulson B2
  12. Ahmed S2
  13. Fricke K2
  14. Popanimigean V2
  15. Millar Z2
  16. Venkatesh A2
  17. Willison A4
  18. Senthil K2
  19. Hazenbiller O5
  20. Sarewitz E6
  21. Sadler I6
  22. Gronlund T7
  23. Tetreault L8
  24. Harrop JS9
  25. Aarabi B10
  26. Rahimimovaghar V11
  27. Kurpad SN12
  28. Guest JD13
  29. Wilson JR14
  30. Kwon BK15
  31. Fehlings MG14
  32. Mcnair AGK16
  33. Davies BM1
  34. Kotter MRN1
Show Affiliations
Authors Affiliations
  1. 1. Division of Neurosurgery, Department of Clinical Neurosciences, University of Cambridge, Addenbrooke's Hospital, United Kingdom
  2. 2. School of Clinical Medicine, University of Cambridge, United Kingdom
  3. 3. School of Medicine, The University of Sheffield, United Kingdom
  4. 4. School of Medicine, University of Dundee, United Kingdom
  5. 5. Research Department, AO Spine, AO Foundation, Davos, Switzerland
  6. 6. Myelopathy.org, United Kingdom
  7. 7. National Institute for Health Research, University of Southampton, United Kingdom
  8. 8. Langone Health, Graduate Medical Education, Department of Neurology, New York University, New York, NY, United States
  9. 9. Department of Neurological Surgery, Thomas Jefferson University, Philadelphia, PA, United States
  10. 10. Department of Neurosurgery, University of Maryland School of Medicine, Baltimore, MD, United States
  11. 11. Department of Neurosurgery, Sina Trauma and Surgery Research Center, Tehran University of Medical Sciences, Tehran, Iran
  12. 12. Department of Neurosurgery, Medical College of Wisconsin, Wauwatosa, WI, United States
  13. 13. Department of Neurosurgery, University of Miami, Miami, FL, United States
  14. 14. Division of Neurosurgery, Department of Surgery, University of Toronto, Canada
  15. 15. Vancouver Spine Surgery Institute, Department of Orthopedics, The University of British Columbia, Vancouver, BC, Canada
  16. 16. Bristol Centre for Surgical Research, University of Bristol, United Kingdom

Source: Global Spine Journal Published:2022


Abstract

Study Design: Survey. Introduction: AO Spine Research Objectives and Common Data Elements for Degenerative Cervical Myelopathy (AO Spine RECODE-DCM) is an international initiative that aims to accelerate knowledge discovery and improve outcomes by developing a consensus framework for research. This includes defining the top research priorities, an index term and a minimum data set (core outcome set and core data elements set – core outcome set (COS)/core data elements (CDE)). Objective: To describe how perspectives were gathered and report the detailed sampling characteristics. Methods: A two-stage, electronic survey was used to gather and seek initial consensus. Perspectives were sought from spinal surgeons, other healthcare professionals and people with degenerative cervical myelopathy (DCM). Participants were allocated to one of two parallel streams: (1) priority setting or (2) minimum dataset. An email campaign was developed to advertise the survey to relevant global stakeholder individuals and organisations. People with DCM were recruited using the international DCM charity Myelopathy.org and its social media channels. A network of global partners was recruited to act as project ambassadors. Data from Google Analytics, MailChimp and Calibrum helped optimise survey dissemination. Results: Survey engagement was high amongst the three stakeholder groups: 208 people with DCM, 389 spinal surgeons and 157 other healthcare professionals. Individuals from 76 different countries participated; the United States, United Kingdom and Canada were the most common countries of participants. Conclusion: AO Spine RECODE-DCM recruited a diverse and sufficient number of participants for an international PSP and COS/CDE process. Whilst PSP and COS/CDE have been undertaken in other fields, to our knowledge, this is the first time they have been combined in one process. © The Author(s) 2021.
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