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Improving Awareness Could Transform Outcomes in Degenerative Cervical Myelopathy [Ao Spine Recode-Dcm Research Priority Number 1] Publisher



Davies BM1, 2 ; Mowforth O1, 2 ; Wood H1 ; Karimi Z1 ; Sadler I1 ; Tetreault L3 ; Milligan J4 ; Wilson JRF5 ; Kalsiryan S6, 7 ; Furlan JC6, 7 ; Kawaguchi Y8 ; Ito M9 ; Zipser CM10 ; Boerger TF11 Show All Authors
Authors
  1. Davies BM1, 2
  2. Mowforth O1, 2
  3. Wood H1
  4. Karimi Z1
  5. Sadler I1
  6. Tetreault L3
  7. Milligan J4
  8. Wilson JRF5
  9. Kalsiryan S6, 7
  10. Furlan JC6, 7
  11. Kawaguchi Y8
  12. Ito M9
  13. Zipser CM10
  14. Boerger TF11
  15. Vaccaro AR12
  16. Murphy RKJ13
  17. Hutton M14
  18. Rodriguespinto R15, 16
  19. Koljonen PA17
  20. Harrop JS18
  21. Aarabi B19
  22. Rahimimovaghar V20
  23. Kurpad SN11
  24. Guest JD21
  25. Wilson JR22
  26. Kwon BK23
  27. Kotter MRN1, 2
  28. Fehlings MG22
Show Affiliations
Authors Affiliations
  1. 1. Myelopathy.org, International Charity for Degenerative Cervical Myelopathy, Cambridge, United Kingdom
  2. 2. Department of Neurosurgery, University of Cambridge, Cambridge, United Kingdom
  3. 3. Department of Neurology, Langone Health, Graduate Medical Education, New York University, New York, NY, United States
  4. 4. Department of Family Medicine, McMaster University, Hamilton, ON, Canada
  5. 5. Department of Neurosurgery, University of Nebraska Medical Center, Omaha, NE, United States
  6. 6. KITE Research Institute, University Health Network, Toronto, ON, Canada
  7. 7. Department of Medicine, Division of Physical Medicine and Rehabilitation, University of Toronto, Toronto, ON, Canada
  8. 8. Department of Orthopaedic Surgery, University of Toyama, Toyama, Japan
  9. 9. Department of Orthopaedic Surgery, National Hospital Organization Hokkaido Medical Center, Sapporo, Japan
  10. 10. University Spine Center, Balgrist University Hospital, Zurich, Switzerland
  11. 11. Department of Neurosurgery, Medical College of Wisconsin, Wauwatosa, WI, United States
  12. 12. Department of Orthopaedic Surgery, Rothman Orthopaedic Institute, Thomas Jefferson University, Philadelphia, PA, United States
  13. 13. Department of Neurosurgery, St. Joseph’s Hospital and Medical Center, Barrow Neurological Institute, Phoenix, AZ, United States
  14. 14. Royal Devon and Exeter NHS Foundation Trust, Exeter, United Kingdom
  15. 15. Department of Orthopaedics, Spinal Unit (UVM), Centro Hospitalar Universitario Do Porto - Hospital de Santo Antonio, Porto, Portugal
  16. 16. Instituto de Ciencias Biomedicas Abel Salazar, Porto, Portugal
  17. 17. Department of Orthopaedics and Traumatology, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Hong Kong
  18. 18. Department of Neurological Surgery, Thomas Jefferson University, Philadelphia, PA, United States
  19. 19. Department of Neurosurgery, University of Maryland School of Medicine, Baltimore, MD, United States
  20. 20. Department of Neurosurgery, Sina Trauma and Surgery Research Center, Tehran University of Medical Sciences, Tehran, Iran
  21. 21. Department of Neurosurgery and The Miami Project to Cure Paralysis, The Miller School of Medicine, University of Miami, Miami, FL, United States
  22. 22. Department of Surgery, Division of Neurosurgery, University of Toronto, Toronto, ON, Canada
  23. 23. Department of Orthopedics, Vancouver Spine Surgery Institute, The University of British Columbia, Vancouver, BC, Canada

Source: Global Spine Journal Published:2022


Abstract

Study Design: Literature Review (Narrative) Objective: To introduce the number one research priority for Degenerative Cervical Myelopathy (DCM): Raising Awareness. Methods: Raising awareness has been recognized by AO Spine RECODE-DCM as the number one research priority. This article reviews the evidence that awareness is low, the potential drivers, and why this must be addressed. Case studies of success from other diseases are also reviewed, drawing potential parallels and opportunities for DCM. Results: DCM may affect as many as 1 in 50 adults, yet few will receive a diagnosis and those that do will wait many years for it. This leads to poorer outcomes from surgery and greater disability. DCM is rarely featured in healthcare professional training programs and has received relatively little research funding (<2% of Amyotrophic Lateral Sclerosis or Multiple Sclerosis over the last 25 years). The transformation of stroke and acute coronary syndrome services, from a position of best supportive care with occasional surgery over 50 years ago, to avoidable disability today, represents transferable examples of success and potential opportunities for DCM. Central to this is raising awareness. Conclusion: Despite the devastating burden on the patient, recognition across research, clinical practice, and healthcare policy are limited. DCM represents a significant unmet need that must become an international public health priority. © The Author(s) 2022.
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