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Barriers to Home-Based Palliative Care in People With Cancer: A Qualitative Study of the Perspective of Caregivers Publisher



Hassankhani H1, 2 ; Rahmani A2, 3 ; Best A4 ; Taleghani F5 ; Sanaat Z6, 7 ; Dehghannezhad J2, 8
Authors
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Authors Affiliations
  1. 1. Center of Qualitative Studies, School of Nursing and Midwifery, Tabriz University of Medical Sciences, Tabriz, Iran
  2. 2. Medical-Surgical Department, Nursing & Midwifery Faculty, Tabriz, Iran
  3. 3. Medical Education Research Center, Tabriz University of Medical Sciences, Tabriz, Iran
  4. 4. Campus Teacher Acute Care, School of Nursing Massey University, Wellington, New Zealand
  5. 5. Nursing and Midwifery Care Research Center, Faculty of Nursing and Midwifery, Isfahan University of Medical Sciences, Isfahan, Iran
  6. 6. Department of Hematology and Oncology, Tabriz University of Medical Sciences, Tabriz, Iran
  7. 7. Hematology and Oncology Research Center, Tabriz University of Medical Sciences, Tabriz, Iran
  8. 8. Nursing and Midwifery Faculty, Tabriz University of Medical Sciences, Tabriz, Iran

Source: Nursing Open Published:2020


Abstract

Aim: To investigate the barriers to home-based palliative care for cancer patients from professional caregivers' experiences. Design: A qualitative study. Method: This is a descriptive-qualitative study carried out in the community-based care. Twenty-three participants took part in this study. Data were collected through semi-structured interviews. Results: Data analysis led to the identification of three category of barriers including the lack of instructions (the lack of clinical practice guidelines, the ambiguity of tariffs and the lack of insurance coverage), family desperation (family views of prognosis, distrust and poverty) and lack of professionalism (limited knowledge, the use of amateur nurses and siloed care). Developing a care protocol and providing resources support contribute to the development of home-based palliative care. Moreover, the education of families and training courses for nurses must be fostered. © 2020 The Authors. Nursing Open published by John Wiley & Sons Ltd.
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