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Health Information Needs of Families at Childhood Cancer: A Qualitative Study Publisher



Koohkan E1 ; Yousofian S2 ; Rajabi G3 ; Zarefarashbandi F4
Authors
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Authors Affiliations
  1. 1. Department of Medical Library and Information Sciences, Isfahan University of Medical Sciences, Isfahan, Iran
  2. 2. Department of Pediatric Hematology-Oncology, Children and Adolescent Health Research Center, Isfahan University of Medical Sciences, Isfahan, Iran
  3. 3. Department of Counselling, Faculty of Education and Psychology, Shahid Chamran University of Ahvaz, Ahvaz, Iran
  4. 4. Department of Medical Library and Information Sciences, Health Information Technology Research Center, Isfahan University of Medical Sciences, Isfahan, Iran

Source: Journal of Education and Health Promotion Published:2019


Abstract

INTRODUCTION: Cancer is the second cause of mortality among children. The aim of this study is to identify the health information needs of families in childhood cancer as main source of support and care for these children. MATERIALS AND METHODS: The qualitative content analysis approach was used in this study. The study population comprised parents of childhood cancer patients visiting Omid Hospital among which 35 were selected using purposive sampling until data saturation was achieved. The study tool was semi-structured interview. RESULTS: A total of 9 main themes and 24 subthemes were identified. The main themes included: (1) information about cancer, (2) disease management and self-care, (3) communication and information interaction of medical team, (4) consultation services, (5) information sharing and exchange, (6) access to health services, (7) hospital's facilities and equipment, (8) access to social and financial support, and (9) access to health information sources. CONCLUSION: Health information needs of families in Isfahan are consistent in information needs of families identified in other studies. Meeting this information needs through plans of health-care system can help these families in better control and treatment of their children's condition. © 2019 Journal of Education and Health Promotion | Published by Wolters Kluwer-Medknow.
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