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Iranian Future Healthcare Professionals' Knowledge and Opinions About Rare Diseases: Cross-Sectional Study Publisher Pubmed



Jahanshahi R1 ; Nasirzadeh A2 ; Farzan M3 ; Domaradzki J4 ; Jouybari L5, 6 ; Sanagoo A5, 6 ; Farzan M3 ; Aghazadehhabashi K7 ; Fallah Faraghe A8 ; Bagheri S9 ; Samiee M10 ; Ansari A11 ; Eskandari K12 ; Namakkoobi N13 Show All Authors
Authors
  1. Jahanshahi R1
  2. Nasirzadeh A2
  3. Farzan M3
  4. Domaradzki J4
  5. Jouybari L5, 6
  6. Sanagoo A5, 6
  7. Farzan M3
  8. Aghazadehhabashi K7
  9. Fallah Faraghe A8
  10. Bagheri S9
  11. Samiee M10
  12. Ansari A11
  13. Eskandari K12
  14. Namakkoobi N13
  15. Soltanimoghadam F14
  16. Mashali H15
  17. Yavari E16
  18. Bay S17
  19. Memaripanah N18
  20. Meftah E19
  21. Amanzadeh S20
  22. Talati F21
  23. Bahramzadeh S22
Show Affiliations
Authors Affiliations
  1. 1. Clinical Research Development Unit (CRDU), Sayad Shirazi Hospital, Golestan University of Medical Sciences, Gorgan, Iran
  2. 2. Student Research Committee, Mashhad University of Medical Sciences, Mashhad, Iran
  3. 3. Student Research Committee, Shahrekord University of Medical Sciences, Shahrekord, Iran
  4. 4. Department of Social Sciences and Humanities, Poznan University of Medical Sciences, Poznan, Poland
  5. 5. School of Nursing and Midwifery, Golestan University of Medical Sciences, Gorgan, Iran
  6. 6. School of Nursing and Midwifery, Golestan University of Medical Sciences, Gorgan, Iran
  7. 7. Student Research Committee, Tabriz University of Medical Sciences, Tabriz, Iran
  8. 8. Student Research Committee, School of Nursing and Midwifery, Shahid Sadoughi University of Medical Sciences, Yazd, Iran
  9. 9. Department of Nursing, School of Nursing and Midwifery, Gonabad University of Medical Sciences, Gonabad, Iran
  10. 10. Department of Medical Laboratory Sciences, The School of Allied Medicine Sciences, Tehran University of Medical Sciences, Tehran, Iran
  11. 11. Student Research Committee, School of Medicine, North Khorasan University of Medical Sciences, Bojnurd, Iran
  12. 12. Student Research Committee, Torbat Heydariyeh University of Medical Sciences, Torbat Heydariyeh, Iran
  13. 13. Student Research Committee, Rafsanjan University of Medical Sciences, Rafsanjan, Iran
  14. 14. Department of Biology, Science and Art University, Yazd, Iran
  15. 15. Student Research Committee, Shiraz University of Medical Science, Shiraz, Iran
  16. 16. Student Research Committee, School of Nursing, Tehran University of Medical Sciences, Tehran, Iran
  17. 17. Student Research Committee, Golestan University of Medical Sciences, Gorgan, Iran
  18. 18. Student Research Committee, Semnan University of Medical Sciences, Semnan, Iran
  19. 19. Students’ Scientific Research Center, Tehran University of Medical Sciences, Tehran, Iran
  20. 20. Students Research Committee, Golestan University of Medical Sciences, Gorgan, Iran
  21. 21. Department of Nutrition, Islamic Azad University, Sarvestan Branch, Sarvestan, Iran
  22. 22. Student Research Committee, Hamadan University of Medical Sciences, Hamadan, Iran

Source: Orphanet Journal of Rare Diseases Published:2022


Abstract

Background: Rare diseases are a new global health priority, requiring evidence-based estimates of the global prevalence of diseases to inform public policymakers and provide a serious challenge to the healthcare system that must not be ignored. The purpose of this study is to investigate Iranian future healthcare professionals' knowledge and opinions about rare diseases. Results: A total of 6838 students responded to the questionnaire. Nursing and medical students had the highest participation. Almost 85% of participants rated their knowledge about rare diseases as poor or insufficient. While nearly 70 percent of participants took courses about rare diseases at university. Finally, 72.7% of future healthcare professionals did not feel ready to take care of a patient with a rare disease. Conclusion: The present study has indicated a gap in Iranian medical students’ knowledge of rare diseases. The researchers believe that health science policymakers should make a joint effort to improve knowledge about rare diseases. Including courses with regard to rare diseases would be of benefit to future healthcare professionals. © 2022, The Author(s).
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