Completeness and Accuracy of Death Registry Data in Golestan, Iran

Completeness and Accuracy of Death Registry Data in Golestan, Iran Pubmed

Hasanpourheidari S¹ ; Jafaridelouei N¹ ; Shokoohifar N¹ ; Sedaghat SM² ; Moghaddami A² ; Hosseinpour R² ; Poorabbasi M³ ; Gholami M³ ; Semnani S¹ ; Naeimitabiei M⁴ ; Honarvar MR² ; Fazel A⁵ ; Etemadi A^{6, 7} ; Bray F⁸ Show All Authors

Hasanpourheidari S¹
Jafaridelouei N¹
Shokoohifar N¹
Sedaghat SM²
Moghaddami A²
Hosseinpour R²
Poorabbasi M³
Gholami M³
Semnani S¹
Naeimitabiei M⁴
Honarvar MR²
Fazel A⁵
Etemadi A^{6, 7}
Bray F⁸
Roshandel G¹

Show Affiliations

1. Golestan Research Center of Gastroenterology and Hepatology, Golestan University of Medical Sciences, Gorgan, Iran
2. Deputy of Public Health, Golestan University of Medical Sciences, Gorgan, Iran
3. Death Registry Unit, Deputy of Public Health, Golestan University of Medical Sciences, Gorgan, Iran
4. Cancer Research Center, Golestan University of Medical Sciences, Gorgan, Iran
5. Omid Cancer Research Center, Omid Preventive Medicine and Health Promotion Center, Golestan University of Medical Sciences, Gorgan, Iran
6. Division of Cancer Epidemiology & Genetics, National Cancer Institute, Bethesda, MD, United States
7. Digestive Oncology Research Center, Digestive Disease Research Institute, Tehran University of Medical Sciences, Shariati Hospital, Tehran, Iran
8. Section of Cancer Surveillance, International Agency for Research on Cancer, Lyon, France

Source: Archives of Iranian Medicine Published:2019

Abstract

Background: We aimed to evaluate completeness and accuracy of the Golestan Death Registry (GDR) to identify cancer-related causes of death (CCoD). Methods: The GDR data (2004-2015) were compared with cancer data collected from clinical/pathological sources (the considered gold standard) by the Golestan Population-Based Cancer Registry (GPCR). Using a linkage method, matched cases, including subjects with CCoD and those with ill-defined cause of death (ICoD) (garbage codes), were identified and entered into the final analysis as study subjects. The completeness (percentage of study subjects with CCoD) and accuracy (number of subjects with correct CoD from the total number of study subjects) of the GDR were calculated. Results: In total, 3,766 matched cases were enrolled. Overall, the completeness and accuracy of the GDR for identifying CCoD were 92.7% and 53.2%, respectively. There were variations by cancer site and age group, with completeness and accuracy highest for brain cancer (96.3%) and leukaemia (79.8%) while the lowest accuracy was observed for colorectal cancer (29.9%). The completeness and accuracy of GDR was higher in patients aged under 60 years (95.7% and 53.6%, respectively). We also found higher completeness (93.7%) and accuracy (55.8%) in residents of rural areas. Conclusion: Linkage of death registry data with cancer registry data can be a significant resource for evaluating quality of the death registry data. Our findings suggested that completeness of the GDR for identifying CCoD is reasonable, but accuracy is relatively low. Access to clinical and pathological data from other sources and enhanced training of death certifiers can improve the present situation. © 2018 The Author(s).

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Style	Citing Format
MLA	Hasanpourheidari S, et al.. "Completeness and Accuracy of Death Registry Data in Golestan, Iran." Archives of Iranian Medicine, vol. 22, no. 1, 2019, pp. 1-6.
APA	Hasanpourheidari S, Jafaridelouei N, Shokoohifar N, Sedaghat SM, Moghaddami A, Hosseinpour R, Poorabbasi M, Gholami M, Semnani S, Naeimitabiei M, Honarvar MR, Fazel A, Etemadi A, Bray F, Roshandel G (2019). Completeness and Accuracy of Death Registry Data in Golestan, Iran. Archives of Iranian Medicine, 22(1), 1-6.
Chicago	Hasanpourheidari S, Jafaridelouei N, Shokoohifar N, Sedaghat SM, Moghaddami A, Hosseinpour R, Poorabbasi M, et al.. "Completeness and Accuracy of Death Registry Data in Golestan, Iran." Archives of Iranian Medicine 22, no. 1 (2019): 1-6.
Harvard	Hasanpourheidari S et al. (2019) 'Completeness and Accuracy of Death Registry Data in Golestan, Iran', Archives of Iranian Medicine, 22(1), pp. 1-6.
Vancouver	Hasanpourheidari S, Jafaridelouei N, Shokoohifar N, Sedaghat SM, Moghaddami A, Hosseinpour R, et al.. Completeness and Accuracy of Death Registry Data in Golestan, Iran. Archives of Iranian Medicine. 2019;22(1):1-6.
BibTex	@article{ author = {Hasanpourheidari S and Jafaridelouei N and Shokoohifar N and Sedaghat SM and Moghaddami A and Hosseinpour R and Poorabbasi M and Gholami M and Semnani S and Naeimitabiei M and Honarvar MR and Fazel A and Etemadi A and Bray F and Roshandel G}, title = {Completeness and Accuracy of Death Registry Data in Golestan, Iran}, journal = {Archives of Iranian Medicine}, volume = {22}, number = {1}, pages = {1-6}, year = {2019} }
RIS	TY - JOUR AU - Hasanpourheidari S AU - Jafaridelouei N AU - Shokoohifar N AU - Sedaghat SM AU - Moghaddami A AU - Hosseinpour R AU - Poorabbasi M AU - Gholami M AU - Semnani S AU - Naeimitabiei M AU - Honarvar MR AU - Fazel A AU - Etemadi A AU - Bray F AU - Roshandel G TI - Completeness and Accuracy of Death Registry Data in Golestan, Iran JO - Archives of Iranian Medicine VL - 22 IS - 1 SP - 1 EP - 6 PY - 2019 ER -

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