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Pilot Testing of the International Council of Cardiovascular Prevention and Rehabilitation Registry Publisher Pubmed



Grace SL1, 2 ; Elashie S3 ; Sadeghi M4 ; Papasavvas T5 ; Hashmi F6 ; De Melo Ghisi G1 ; Vargas JL7 ; Alhashemi M5 ; Turkadawi K3
Authors
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Authors Affiliations
  1. 1. School of Kinesiology and Health Science, Faculty of Health, York University, Toronto, M3J 1P3, ON, Canada
  2. 2. KITE, Research Institute & Peter Munk Cardiac Centre, University Health Network, University of Toronto, Toronto, M5S 1A1, ON, Canada
  3. 3. Department of Public Health, College of Health Sciences, QU Health, Qatar University, Doha, Qatar
  4. 4. Cardiac Rehabilitation Research Center, Cardiovascular Research Institute, Isfahan University of Medical Sciences, Isfahan, Iran
  5. 5. Department of Cardiology, Heart Hospital, Hamad Medical Corporation, Doha, Qatar
  6. 6. Department of Rheumatology, Fatima Memorial Hospital, FMH College of Medicine and Dentistry, Lahore, Pakistan
  7. 7. Servicio de Rehabilitacion Cardiaca, Departamento de Cardiocirugia, Centro Medico Nacional, 20 de Noviembre, Ciudad de Mexico, 03104, Mexico

Source: International Journal for Quality in Health Care Published:2023


Abstract

The International Council of Cardiovascular Prevention and Rehabilitation developed an International Cardiac Rehabilitation (CR) Registry (ICRR) to support CR programs in low-resource settings to optimize care provision and patient outcomes. This study assessed implementation of the ICRR, site data steward experience with on-boarding and data entry, and patient acceptability. Multimethod observational pilot involves (I) analysis of ICRR data from three centers (Iran, Pakistan, and Qatar) from inception to May 2022, (II) focus group with on-boarded site data stewards (also from Mexico and India), and (III) semistructured interviews with participating patients. Five hundred sixty-seven patients were entered. Based on volumes at each program, 85.6% of patients were entered in ICRR. 99.3% patients approached consented to participate. The average time to enter data at pre- and follow-up assessments by source was 6.8-12.6 min. Of 22 variables preprogram, completion was 89.5%. Among patients with any follow-up data, of four program-reported variables, completion was 99.0% in program completers and 51.5% in none; of 10 patient-reported variables, completion was 97.0% in program completers and 84.8% in none. The proportion of patients with any follow-up data was 84.8% in program completers, with 43.6% of noncompleters having any data entered other than completion status. Twelve data stewards participated in the focus group. Main themes were valuable on-boarding process, data entry, process of engaging patients, and benefits of participation. Thirteen patients were interviewed. Themes were good understanding of the registry, positive experience providing data, and value of lay summary and eagerness for annual assessment. Feasibility and data quality of ICRR were demonstrated. © 2023 The Author(s). Published by Oxford University Press on behalf of International Society for Quality in Health Care.
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