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A Global, Regional, and National Survey on Burden and Quality of Care Index of Multiple Sclerosis: Global Burden of Disease Systematic Analysis 1990-2019 Publisher Pubmed



Maroufi SF1 ; Shobeiri P1 ; Mohammadi E1, 2 ; Azadnajafabad S1 ; Malekpour MR1 ; Ghasemi E1 ; Rashidi MM1 ; Saeedi Moghaddam S1, 3 ; Rezaei N1 ; Sharifnejad Tehrani Y1 ; Mohammadi Fateh S1 ; Ahmadi N1 ; Farzi Y1 ; Rezaei N1 Show All Authors
Authors
  1. Maroufi SF1
  2. Shobeiri P1
  3. Mohammadi E1, 2
  4. Azadnajafabad S1
  5. Malekpour MR1
  6. Ghasemi E1
  7. Rashidi MM1
  8. Saeedi Moghaddam S1, 3
  9. Rezaei N1
  10. Sharifnejad Tehrani Y1
  11. Mohammadi Fateh S1
  12. Ahmadi N1
  13. Farzi Y1
  14. Rezaei N1
  15. Larijani B4
Show Affiliations
Authors Affiliations
  1. 1. Non-Communicable Diseases Research Center, Endocrinology and Metabolism Population Sciences Institute, Tehran University of Medical Sciences, Tehran, Iran
  2. 2. Department of Neurological Surgery, University of Oklahoma Health Sciences Center, Oklahoma, OK, United States
  3. 3. Kiel Institute for the World Economy, Kiel, Germany
  4. 4. Endocrinology and Metabolism Research Center, Endocrinology and Metabolism Clinical Sciences Institute, Tehran University of Medical Sciences, Tehran, Iran

Source: Neuroepidemiology Published:2023


Abstract

Background: Multiple sclerosis (MS) is a common neurologic autoimmune disorder. We have used a newly introduced measure, Quality of Care Index (QCI), which is associated with the efficacy of care given to patients suffering from MS. Objectives: The aims of the study were to report and compare the quality of care given to MS patients in different regions and country. Methods: Primary measures were retrieved from Global Burden of Disease (GBD) from 1990 to 2019. Secondary measures (mortality-to-incidence ratio, DALY-to-prevalence ratio, prevalence-to-incidence ratio, and YLL-to-YLD ratio) were combined using principal component analysis, to form an essential component (QCI) (0-100 index with higher values representing better condition). Results: In 2019, there were 59,345 (95% UI: 51,818-66,943) new MS incident cases globally. Global QCI of 88.4 was calculated for 2019. At national level, Qatar had the highest quality of care (100) followed by Kuwait (98.5) and Greenland (98.1). The lowest QCI was observed in Kiribati (13.5), Nauru (31.5), and Seychelles (36.3), respectively. Most countries have reached gender equity during the 30 years. Also, QCI was lowest in ages from 55 to 80 in global scale. Conclusion: MS QCI is better among those countries of higher socioeconomic status, possibly due to better healthcare access and early detection in these regions. Countries could benefit from adopting the introduced QCI to evaluate the quality of care given to MS patients at national and global level. © 2023 The Author(s).Published by S. Karger AG, Basel.
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